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NCT06940869: NURTURE

Network to Understand Reproductive Rheumatology Registry

ENROLLING BY INVITATION Last updated 28 May 2025
What this trial tests

trial testing NURTURE Registry in Rheumatic Diseases in 1,000 participants. Enrolling by invitation.

Timeline
19 May 2025
Primary endpoint
1 January 2035
1 January 2035

Quick facts

Lead sponsorDuke University
StatusENROLLING BY INVITATION
Study typeOBSERVATIONAL
Enrollment1,000
Start date19 May 2025
Primary completion1 January 2035
Estimated completion1 January 2035
Sites1 location across United States

Drugs / interventions tested

Conditions studied

Sponsor

Duke University

Who can join

Adults 12 to 55, female only, with Rheumatic Diseases or Pregnancy Related. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

The purpose of the NURTURE Registry is to enroll those who are pregnant and/or potentially capable of pregnancy. Participants will complete patient-reported surveys at enrollment and periodically prior to conception, during pregnancy, and following the completion of the study pregnancy. The study rheumatologist will provide the patient's diagnosis and record rheumatic disease activity at each clinic visit. Medication use, vital signs, and routine laboratory assessments will be collected throughout this period. Pregnancy, maternal, and infant outcomes will be obtained through the electronic medical record and from patient-reported surveys. This Registry will provide a rich data repository for research to improve pregnancy and birth outcomes for women with rheumatic diseases and will be used in on-going and future research to better understand the risk factors that are associated with poor pregnancy outcomes, including preterm birth, intrauterine growth restriction, and preeclampsia, as well as the effects of medication on disease management in pregnancy. Infant outcomes, medications, provider care, pregnancy planning, and social determinants of health on pregnancy and pregnancy outcomes will also be collected. The majority of the information collected in NURTURE, such as labs, disease activity, and medications, PRO's will originate from the EHR. Upon consent, participants will complete an enrollment survey that will include relevant patient reported measures. No study visits outside of routine care will occur. Participants may also complete a yearly survey about their reproductive health journey. The registry will be ongoing and will include periodic analysis of clinical data within this protocol. Additional analysis will be covered under seperate IRB approved protocols. Enrollment in the registry does not significantly increase the risk for a patient.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other recruiting trials for Rheumatic Diseases

Currently open trials in the same condition.

Other Duke University trials

Trials by the same sponsor.

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Data sources for this page

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