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NCT07350395

Exploring and Measuring the Impact of Steroids in Children and Young People

Recruiting now Last updated 20 January 2026
What this trial tests

trial in Rheumatic Diseases in 70 participants. Currently enrolling.

Timeline
1 November 2025
Primary endpoint
1 October 2026
31 December 2026

Quick facts

Lead sponsorUniversity of the West of England
StatusRecruiting now
Study typeOBSERVATIONAL
Enrollment70
Start date1 November 2025
Primary completion1 October 2026
Estimated completion31 December 2026
Sites3 locations across United Kingdom

Conditions studied

Sponsor

University of the West of England

Who can join

Under 18, any sex, with Rheumatic Diseases or Rheumatic Disorder. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Assessing the impact of glucocorticoids in children and young people with rheumatic conditions, to develop a patient reported outcome measure (PROM). Glucocorticoids, also known as steroids, are a very effective medication for the treatment of rheumatological conditions. They are used to reduce inflammation, pain and damage to organs. However, steroids can have some unwanted side effects, such as, increased weight, skin changes, feeling anxious, delayed puberty, diabetes and loss of bone mass. These side effects can therefore impact children and young people's health related quality of life (HRQoL). The investigators would like to create a new questionnaire for children and young people (CYP) who take steroids due to their rheumatological condition. The questionnaire, called a Patient Reported Outcome Measure, (PROM), will measure how steroids are affecting CYP. The first step in creating the questionnaire is to talk to children, young people and their parents/guardians about their experiences of taking steroids. The investigators plan to do this in focus groups, with people around the same age. The second step will then be to take everything people said in the focus group to create the questions in the questionnaire. Cognitive interviewing will then be used in a structured one on one interview to test for relevance, clarity and understanding of the questions. Children, young people and their parents/guardians will be involved throughout the research. Children and young people will give their thoughts and feedback on resources created for participants (consent forms/assent forms/participation information sheet/interview schedule), as well as how the focus groups and cognitive interviews should be structured. With consent, participants will be provided with a lay summary of the results. Results will also be published within peer-reviewed journals, special interest groups, trial meetings, patient charity meetings and presented at conferences.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other recruiting trials for Rheumatic Diseases

Currently open trials in the same condition.

Other University of the West of England trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

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