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NCT06691048: NeuroDevAD

Neurodevelopmental Disorder Diagnosis During Adulthood

Recruiting now Last updated 15 November 2024
What this trial tests

trial testing Description of an adult population diagnosed late with a neurodevelopmental disorder in Neurodevelopmental Disorders in 300 participants. Currently enrolling.

Timeline
8 January 2024
Primary endpoint
15 May 2024
1 December 2024

Quick facts

Lead sponsorHospices Civils de Lyon
StatusRecruiting now
Study typeOBSERVATIONAL
Enrollment300
Start date8 January 2024
Primary completion15 May 2024
Estimated completion1 December 2024
Sites1 location across France

Drugs / interventions tested

Conditions studied

Sponsor

Hospices Civils de Lyon — full company profile →

Who can join

Adults 18 to 55, any sex, with Neurodevelopmental Disorders. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

The prevalence of neurodevelopmental disorders (specific learning disorders: dyslexia, dysorthographia, dysgraphia and dyscalculia; communication disorders; developmental coordination disorders; attention deficit disorder with or without hyperactivity (ADHD); intellectual disability (ID) and autism spectrum disorders) in the general population is very high, representing over 15% of the paediatric population. Among this population, between 40% and 90% remain symptomatic into adulthood. In addition to the part of the population diagnosed in childhood and lost to the transition to adulthood, a significant part of this population remains unidentified and therefore untreated (up to 60%). It is in adulthood that the diagnosis of neurodevelopmental disorders must be identified as being at the origin of at least some of the cognitive dysfunctions observed: failure at school, difficulties in socio-professional integration... Thus, the lifelong care diagnostic pathway needs to be developed both from an organizational point of view and in terms of the scientific knowledge required to best organize a personalized health pathway for this population. The current challenge for this population is to offer a structured care pathway, from diagnosis to care and medico-social integration. This project will provide comprehensive, homogeneous data for cohorts of patients requiring diagnostic advice and lifelong management of their disorders. Thesecomprehensive data will contribute to scientific publications on patient cohorts. At present, very few centers have complete, homogeneous data on late-diagnosis adults, so our project will have a scientific and academic impact in its own right.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other recruiting trials for Neurodevelopmental Disorders

Currently open trials in the same condition.

Other Hospices Civils de Lyon trials

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Data sources for this page

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