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NCT06075797: PQ-ResPOND

The PediQUEST Response to Pain Of Children With Neurologic Disability Pilot Randomized Controlled Trial

Completed NA Last updated 21 January 2026
What this trial tests

NA trial testing PediQUEST ResPOND in Cerebral Palsy Infantile in 54 participants. Completed in 31 July 2025.

Timeline
8 May 2024
Primary endpoint
15 July 2025
31 July 2025

Quick facts

Lead sponsorMassachusetts General Hospital
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationrandomized
Designparallel
Maskingnone
Primary purposeother
Enrollment54
Start date8 May 2024
Primary completion15 July 2025
Estimated completion31 July 2025
Sites4 locations across United States, Australia

Drugs / interventions tested

Conditions studied

Sponsor

Massachusetts General Hospital

Who can join

1 and older, any sex, with Cerebral Palsy Infantile or Disabilities Multiple. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

The goal of this pilot randomized controlled trial is to test the feasibility of running a full scale randomized controlled trial that compares the effect of the PQ-ResPOND intervention versus usual care to improve recurrent pain in children, adolescents, and young adults with severe neurologic impairment. The main questions it aims to answer are: * Is the study feasible and acceptable for participants? * Does PQ-ResPOND have a potential to be effective? Participants will: * answer surveys (their parents will) telling us about the child's pain, symptoms, and use of complementary therapies, and about their own psychological distress and satisfaction with care. * a group will receive the PQ-ResPOND intervention which consists of: * activating parents and providers by using the PediQUEST system, a web platform that administers surveys and generates feedback reports alerting parents and providers about the child's experience, AND * responding to child pain or discomfort by incorporating the Response team (members of the hospital's palliative care team) into the child's care to privde a standardized approach to managing recurrent pain. Researchers will use a comparison (control) group consisting of participants who will answer surveys and receive usual care (no feedback reports or consult with palliative care in this group) to see if a randomized design is feasible.

Publications & conference data

No peer-reviewed publications indexed yet for this trial. Completed trials usually publish results within 12-18 months.

Verify or expand the search:

Other recruiting trials for Cerebral Palsy Infantile

Currently open trials in the same condition.

Other Massachusetts General Hospital trials

Trials by the same sponsor.

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Data sources for this page

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