Last reviewed · How we verify
NCT06064643: VWD360
The Lived Experience of People With Von Willebrand Disease
trial testing Online Survey in Von Willebrand Diseases in 611 participants. Completed in 30 June 2025.
30 June 2025
Quick facts
| Lead sponsor | Haemnet |
|---|---|
| Status | Completed |
| Study type | OBSERVATIONAL |
| Enrollment | 611 |
| Start date | 8 December 2023 |
| Primary completion | 30 June 2025 |
| Estimated completion | 30 June 2025 |
| Sites | 1 location across United Kingdom |
Drugs / interventions tested
- Online Survey
- Qualitative Interview
- Bleed Diary
Conditions studied
- Von Willebrand Diseases — all drugs for Von Willebrand Diseases →
Sponsor
Haemnet
Who can join
16 and older, any sex, with Von Willebrand Diseases. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
von Willebrand disease (vWD) is reported to be the most common bleeding disorder, with prevalence estimated at 1% of the general population. Despite this, little is known about its natural history, or of the impact it has on affected individuals and their families. The Haemnet vWD360 programme is a mixed-methods, natural history study designed to gain a greater understanding of vWD and its impact on individuals and their families. It comprises both qualitative and quantitative approaches and is designed to include the perspectives of individuals with a diagnosis of any subtype of vWD. The vWD360 study includes three components: * Quantitative cross-sectional survey * Qualitative one-to-one interviews with affected individuals * 30-day bleed diary.
Publications & conference data
No peer-reviewed publications indexed yet for this trial. Completed trials usually publish results within 12-18 months.
Verify or expand the search:
- PubMed search for NCT06064643
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other trials of Online Survey
Trials testing the same drug.
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- NCT06159699 — Telecommunication Technology-based Online Survey · recruiting
- NCT05224752 — Workplace Violence, Hostility & Safety · withdrawn
Other recruiting trials for Von Willebrand Diseases
Currently open trials in the same condition.
- NCT04119908 — Videomicroscopy for the Prediction of Bleeding in Constitutional Haemorrhagic Diseases · NA · recruiting
- NCT05773638 — Cardiovascular and Venous Thromboembolism Disease in Patients with Von Willebrand Disease in the French West · recruiting
- NCT03853486 — ATHN 9: Severe VWD Natural History Study · active not recruiting
Other Haemnet trials
Trials by the same sponsor.
- NCT05314751 — Learning to Live With Non-severe Haemophilia · completed
- NCT05315232 — The Experiences of People Who Live With Glanzmanns Thrombasthenia. · completed
- NCT04723680 — An Exploration of the Impact of Gene Therapy on the Lives of People With Haemophilia and Their Families · completed
- NCT04723693 — An Exploration of the Impact of Emicizumab on the Lives of People With Haemophilia and Inhibitors and Their Families · completed
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT06064643 (US National Library of Medicine, public domain)
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Haemnet
- Last refreshed: 18 September 2025
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT06064643.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing