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NCT05314751
Learning to Live With Non-severe Haemophilia
trial testing Questionnaire and interview in Hemophilia in 165 participants. Completed in 29 September 2023.
29 September 2023
Quick facts
| Lead sponsor | Haemnet |
|---|---|
| Status | Completed |
| Study type | OBSERVATIONAL |
| Enrollment | 165 |
| Start date | 21 December 2022 |
| Primary completion | 29 September 2023 |
| Estimated completion | 29 September 2023 |
| Sites | 1 location across United Kingdom |
Drugs / interventions tested
- Questionnaire and interview
Conditions studied
- Hemophilia — all drugs for Hemophilia →
Sponsor
Haemnet
Who can join
Adults 16 to 100, male only, with Hemophilia. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
While the burden of standard treatment may be reduced through the use of gene therapy, converting those with severe haemophilia to a mild or moderate phenotype, the long-term sequelae of previous joint bleeds and associated limitations imposed on those with severe haemophilia may not translate to lessen the biomedical burden of living with a history of severe haemophilia. We wish to explore these issues further in the Learning to Live study. The study will also seek to identify the ongoing support needs of those who transition to a milder bleeding phenotype.
Publications & conference data
No peer-reviewed publications indexed yet for this trial. Completed trials usually publish results within 12-18 months.
Verify or expand the search:
- PubMed search for NCT05314751
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
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Trials testing the same drug.
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Other recruiting trials for Hemophilia
Currently open trials in the same condition.
- NCT07579585 — Effects of Photobiomodulation in Hemophilia Patients. · NA · recruiting
- NCT07406139 — PCC Treatment for Hemophilia Patients With Inhibitor（2022PCC-A） · Phase 4 · recruiting
- NCT07285460 — A Study to Investigate the Efficacy and Safety of Fitusiran Prophylaxis in Male Participants Aged 1 to Less Than 12 Year · Phase 3 · recruiting
- NCT07187661 — Intra-Articular Bevacizumab for Preventing Recurrent Hemarthrosis in Hemophilia With Chronic Synovitis · NA · recruiting
- NCT07099313 — Association of Prophylactic Treatment With Treatment Burden and Psychosocial Variables in Patients With Hemophilia · recruiting
Other Haemnet trials
Trials by the same sponsor.
- NCT06064643 — The Lived Experience of People With Von Willebrand Disease · completed
- NCT05315232 — The Experiences of People Who Live With Glanzmanns Thrombasthenia. · completed
- NCT04723680 — An Exploration of the Impact of Gene Therapy on the Lives of People With Haemophilia and Their Families · completed
- NCT04723693 — An Exploration of the Impact of Emicizumab on the Lives of People With Haemophilia and Inhibitors and Their Families · completed
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT05314751 (US National Library of Medicine, public domain)
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Haemnet
- Last refreshed: 13 March 2024
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05314751.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing