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NCT05887388

Adapting Connect-Home Transitional Care for the Unique Needs of Persons With Alzheimer's Disease and Other Dementias and Their Caregivers

Completed NA Results posted Last updated 21 July 2023
What this trial tests

NA trial testing Connect-Home Plus in Pathologic Processes in 38 participants. Completed in 18 March 2022.

Timeline
10 September 2021
Primary endpoint
27 February 2022
18 March 2022

Quick facts

Lead sponsorUniversity of North Carolina, Chapel Hill
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationna
Designsingle group
Maskingnone
Primary purposesupportive care
Enrollment38
Start date10 September 2021
Primary completion27 February 2022
Estimated completion18 March 2022
Sites1 location across United States

Drugs / interventions tested

Conditions studied

Sponsor

University of North Carolina, Chapel Hill

Who can join

18 and older, any sex, with Pathologic Processes. Patients with the condition only — healthy volunteers not accepted.

Results — posted to ClinicalTrials.gov

Per-arm endpoint measurements with 95% confidence intervals where reported. Source: trial results section.

Number of Patients for Whom the Intervention Components Were Feasible Primary · 30 days after SNF discharge

Feasibility will measured using an instrument to audit skilled nursing facility medical records of the patient and the intervention log of services for the Patient and Caregiver dyad. It includes eight dichotomous (yes-no) items that indicate feasibility of the Connect-Home Plus intervention. The feasibility items include: (1) completing the Transition Plan of Care; (2) convening the care plan meeting with caregiver attending; (3) reviewing advance directives in the SNF; (4) scheduling follow-up medical appointments; (5) transmitting records to follow-up clinicians; (6) home care nurse complet

Transition Plan of Care
GroupValue95% CI
Connect-Home Plus Patients16
Care plan meeting
GroupValue95% CI
Connect-Home Plus Patients19
Advance directives
GroupValue95% CI
Connect-Home Plus Patients15
Follow-up medical appointments
GroupValue95% CI
Connect-Home Plus Patients16
Record transmission
GroupValue95% CI
Connect-Home Plus Patients19
Home visit within 24 hours
GroupValue95% CI
Connect-Home Plus Patients17
Call back #1 within 72 hours
GroupValue95% CI
Connect-Home Plus Patients17
Call back #2 and #3 within 30 days
GroupValue95% CI
Connect-Home Plus Patients16
Mean Patient Intervention Satisfaction Scores Primary · 21 days after SNF discharge

This interview guide will be used to assess the acceptability of Connect-Home Plus with persons with ADRD. The interview will include questions about (1) factors that made the Connect-Home Plus transitional care services easy or difficult to use, (2) specific supports that were and were not helpful, (3) the effect of Connect-Home Plus on how to manage issues related to ADRD at home, and (4) unmet needs for care of issues related to ADRD at home. Responses to the interview guide questions will be used to generate 3 4-point Likert scale acceptability scores, including (1) how helpful was Connect

Helpfulness
GroupValue95% CI
Connect-Home Plus Patients1.0± 0
Usefulness
GroupValue95% CI
Connect-Home Plus Patients1.0± 0
Appropriateness
GroupValue95% CI
Connect-Home Plus Patients1.0± 0
Mean Caregiver Intervention Satisfaction Scores Primary · 21 days after SNF discharge

This interview guide will be used to assess the acceptability of Connect-Home Plus with caregivers of persons with ADRD. This interview guide will include questions about (1) factors that made the Connect-Home Plus transitional care services easy or difficult to use, (2) specific supports that were and were not helpful, (3) the effect of Connect-Home Plus on how to manage issues related to ADRD at home, and (4) unmet needs for care of issues related to ADRD at home. Responses to the interview guide questions will be used to generate 3 4-point Likert scale acceptability scores, including (1) ho

Helpfulness
GroupValue95% CI
Connect-Home Plus Caregivers1.3± 0.5
Usefulness
GroupValue95% CI
Connect-Home Plus Caregivers1.0± 0
Appropriateness
GroupValue95% CI
Connect-Home Plus Caregivers1.3± 0.5
Care Transitions Measure-15 (Patient) Secondary · 7 Days After SNF Discharge

The patient's preparedness for discharge will be measured by the Care Transitions Measure-15 (CTM-15), which includes 15 items on a 4-point scale. The CTM-15 measures self-reported knowledge and skills for continuing care at home. Summary scores range 0-100, with higher scores indicating greater preparedness. Data collected from either the Patient or the Caregiver serving as proxy.

GroupValue95% CI
Connect-Home Plus Patients70.3± 12.0
Preparedness for Caregiving Scale (Caregiver) Secondary · 7 Days After SNF Discharge

The caregiver's preparedness for caregiving will be measured by the Preparedness for Caregiving Scale (PCS), which includes 8 items on a five-point Likert scale (0-4). The PCS measures self-reported readiness for caregiving. Range = 0-32, with higher scores associated with greater preparedness.

GroupValue95% CI
Connect-Home Plus Caregivers24.8± 12.4
Life Space Assessment Secondary · 30 Days After SNF Discharge

Patient's function will be measured using the Life Space Assessment, which includes 5 Likert scales corresponding to a hierarchy of levels of mobility (each scored from 0-4) where weights are the product of the "Life-space level" (range 1-5) and the"independence" score (range 1-2). The range is 1-120. Lower scores are associated with less life-space.

GroupValue95% CI
Connect-Home Plus Patients20.1± 9.6
Dementia Quality of Life Measure (Patient) Secondary · 30 Days After SNF Discharge

The quality of life of the person with ADRD will be assessed with the Dementia Quality of Life Measure. It has 28 items that cover four quality of life dimensions: daily activities, memory, negative emotion and positive emotion. The score range is 28-112 with higher scores indicating better quality of life.

GroupValue95% CI
Connect-Home Plus Patients90.8± 9.9
Dementia Quality of Life-Proxy Measure (Caregiver) Secondary · 30 Days After SNF Discharge

When the Patient was unable to answer the DEMQOL, the Caregiver was surveyed with the DEMQOL-Proxy. With this measure, the score range is 31-124 with higher scores indicating better quality of life.

GroupValue95% CI
Connect-Home Plus Caregivers91.1± 10.3
Mean Self-Reported Days of ED or Hospital Use 30 Days After Skilled Nursing Facility Discharge (Patient) Secondary · 30 Days After SNF Discharge

Patient's days of acute care use will be measured using the self-reported number of combined number of days the patients pends in the Emergency Department (ED) or hospital in 30 days after SNF discharge.

GroupValue95% CI
Connect-Home Plus Patients0.58± 1.7
Zarit Caregiver Burden Scale (Caregiver) Secondary · 30 Days After SNF Discharge

Caregiver burden will be measured using the Zarit Caregiver Burden Scale, which includes 12 items on a five-point scale,measuring caregiver perceptions that "caregiving has an adverse effect on their emotional, social, financial, physical and spiritual functioning." Scores range 0-48; higher scores are associated with greater burden.

GroupValue95% CI
Connect-Home Plus Caregivers16.6± 6.6
Distress Thermometer (Caregiver) Secondary · 30 Days After SNF Discharge

Caregiver distress will be measured using the Distress Thermometer, which includes 1 item on an 11-point scale, measuring negative affect (e.g., sadness and fear) related to caregiving for a severely ill person. Score ranges 0-10, with scores \>4 associated with distress.

GroupValue95% CI
Connect-Home Plus Caregivers4.1± 3.1

Adverse events — posted to ClinicalTrials.gov

Time frame: Adverse events were collected from when participants entered the study to when they completed study procedures, an approximate total of up to 60 days.. Reporting threshold: 0%. Adverse-event reports describe events observed during the trial — not all are caused by the drug.

Patients
Serious: 2/19 (11%)
Deaths: 1/19
Caregivers
Serious: 0/19 (0%)
Deaths: 0/19

Serious adverse events (2 terms)

ReactionSystemPatientsCaregivers
Acute UTIInfections and infestations
Myocardial infarctionCardiac disorders

Most-reported serious reactions: Acute UTI, Myocardial infarction.

Data from ClinicalTrials.gov NCT05887388 adverse events section.

Sponsor's own description

This primary purpose of this study will be to (1) examine the feasibility and acceptability of transitional care focusing on care needs of skilled nursing facility (SNF) patients with dementia and their caregivers (primary aim). The secondary purpose will be to describe the effect of the intervention on SNF patient outcomes (preparedness for discharge, quality of life, function and acute care use) and caregiver outcomes (preparedness for the caregiving role, caregiver burden and caregiver distress).

Publications & conference data

No peer-reviewed publications indexed yet for this trial. Completed trials usually publish results within 12-18 months.

Verify or expand the search:

Other recruiting trials for Pathologic Processes

Currently open trials in the same condition.

Other University of North Carolina, Chapel Hill trials

Trials by the same sponsor.

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Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05887388.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing