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NCT04035447

Symptom Management for YA Cancer Survivors

Completed NA Results posted Last updated 29 June 2025
What this trial tests

NA trial testing Behavioral Symptom Management for Young Adult Cancer Survivors in Cancer in 65 participants. Completed in 15 June 2024.

Timeline
22 January 2020
Primary endpoint
15 June 2024
15 June 2024

Quick facts

Lead sponsorDuke University
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationrandomized
Designcrossover
Maskingnone
Primary purposesupportive care
Enrollment65
Start date22 January 2020
Primary completion15 June 2024
Estimated completion15 June 2024
Sites1 location across United States

Drugs / interventions tested

Conditions studied

Sponsor

Duke University

Who can join

Adults 18 to 39, any sex, with Cancer or Young Adult. Patients with the condition only — healthy volunteers not accepted.

Results — posted to ClinicalTrials.gov

Per-arm endpoint measurements with 95% confidence intervals where reported. Source: trial results section.

Intervention Satisfaction: Satisfaction With Therapy and Therapist Scale-Revised (STTS-R) Primary · Following completion of the intervention, up to 12 months

Intervention satisfaction will be assessed using the Satisfaction witth Therapy and Therapist Scale-Revised, a 13-item measure with the first 12-items on a five-point scale ranging from 1 "strongly disagree" to 5 "strongly agree." The 13th item (Global Improvement) asks, "How much did the intervention help with your symptoms?" with 5 answer choices ranging from "made things a lot better" (1) to "made things a lot worse" (5). Each of the subscales (Satisfaction With Therapy and Satisfaction With Therapist) range from 6 to 30, with higher scores indicating greater overall satisfaction. A total s

Satisfaction With Therapy (ST)
GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors26.71± 3.52
Waitlist Control27.33± 3.14
Satisfaction With Therapist (SWT)
GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors28.86± 1.86
Waitlist Control27.75± 3.27
Global Improvement (Item 13)
GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors1.75± 0.52
Waitlist Control1.58± 0.65
Number of Participants Who Completed Open-Ended Questions About the Program Primary · Following completion of the intervention, up to 12 months

Intervention will be evaluated using 3 open-ended questions, including the following: "1) What was the most helpful part of the program?," "2) What was the least helpful part of the program?", and "3) What suggestions do you have for us to help improve the program?"

GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors28
Waitlist Control24
Percentage of Sessions Attended by Each Participant Primary · Following completion of the intervention, up to 12 months

Treatment feasibility will be assessed by measuring the session attendance rate for each participant.

GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors91.96± 23.87
Waitlist Control94.27± 18.42
Treatment Acceptability Questionnaire Primary · Following completion of the intervention, up to 12 months

The Treatment Acceptability Questionnaire is a six-item scale assessing participants' views of an intervention as acceptable, ethical, and effective. Items are rated on a 7-point Likert scale (e.g., 1 "very unacceptable" to 7 "very acceptable") and averaged.

GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors6.54± 0.41
Waitlist Control6.36± 0.83
Use of Intervention Strategies Primary · Following completion of the intervention, up to 12 months

Participants' use of intervention strategies will be assessed using a measure developed specific to components of the proposed intervention. Participants will be asked about how frequently treatment strategies discussed in session have been used outside of session since the previous session or last assessment depending on the timing of the questionnaire. A scale ranging from 0 "not at all" to 5 "every day" will be used.

GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors2.35± 0.83
Waitlist Control2.67± 1.24
Self-reported Use of the Mobile Application Primary · Following completion of the intervention, up to 12 months

Participants' use of the mobile application will be assessed using a measure developed specific to components of the proposed mobile application. Participants will be asked about how frequently they have used components of the mobile application outside of session since the previous session or last assessment depending on the timing of the questionnaire. A scale ranging from 0 "not at all" to 5 "2 or more times a day" will be used.

GroupValue95% CI
Behavioral Symptom Management for Young Adult Cancer Survivors0.79± 0.9
Waitlist Control0.96± 1.37
Change in Depressive Symptoms: PROMIS Depression Short Form Secondary · Baseline and again 3, 6, 9, and 12 months following the baseline assessment, pre-intervention (baseline for Intervention, 6 months for Waitlist Control) and post-intervention (3 months for Intervention, 9 months for Waitlist Control) reported

Depressive Symptoms will be assessed using the Patient Reported Outcomes Measurement Information System Depression Short Form-8a, an 8-item measure assessing symptoms of depression in the last week. Participants are asked to respond to items (e.g., "I felt sad," "I felt helpless") using a five-point scale ranging from 1 "never" to 5 "always." Items are summed and converted to standardized t-scores with a mean of 50 and standard deviation of 10. Higher T-scores indicate higher levels of depression. T-scores of 55 to 60 indicate mild levels of depression, 60 to 70 indicates moderate levels of de

GroupValue95% CI
Pre-Intervention50.3± 10.2
Post-Intervention48.7± 9.6
Change in Anxiety: PROMIS Anxiety Short Form Secondary · Baseline and again 3, 6, 9, and 12 months following the baseline assessment, pre-intervention (baseline for Intervention, 6 months for Waitlist Control) and post-intervention (3 months for Intervention, 9 months for Waitlist Control) reported

Symptoms of Anxiety will be assessed using the Patient Reported Outcomes Measurement Information System Anxiety Short Form-8a, an 8-item measure assessing symptoms of anxiety in the last week. Participants are asked to respond to items (e.g., "I felt nervous," "I felt tense") using a five-point scale ranging from 1 "never" to 5 "always". Total scores are then converted to T-scores. Items are summed and converted to standardized t-scores with a mean of 50 and standard deviation of 10. Higher T-scores indicate higher levels of anxiety. T-scores of 55 to 60 indicate mild levels of anxiety, 60 to

GroupValue95% CI
Pre-Intervention53.1± 12
Post-Intervention52.6± 12
Change in Symptom Interference: Illness Intrusiveness Rating Scale Secondary · Baseline and again 3, 6, 9, and 12 months following the baseline assessment, pre-intervention (baseline for Intervention, 6 months for Waitlist Control) and post-intervention (3 months for Intervention, 9 months for Waitlist Control) reported

Symptom interference will be assessed using the Illness Intrusiveness Rating Scale (IIRS). The IIRS assesses the extent to which an illness and/ or its treatments interfere with 13 quality of life domains (e.g., health, diet, work, sex life, active recreation). Items are rated on a 7-point scale from 1 "not very much" to 7 "very much." The total score ranges from 7 to 91, where a higher score indicates greater interference.

GroupValue95% CI
Pre-Intervention36.4± 20
Post-Intervention32.8± 17.4
Change in Pain: Brief Pain Inventory Secondary · Baseline and again 3, 6, 9, and 12 months following the baseline assessment; pre-intervention (baseline for Intervention, 6 months for Waitlist Control) and post-intervention (3 months for Intervention, 9 months for Waitlist Control) reported

The Brief Pain Inventory is a 9-item, self-report measure assessing pain severity and interference from pain across important life domains (e.g., general activity, work, relations with others). Participants rate their pain on a scale from 0 "no pain" to 10 "pain as bad as you can imagine." Pain severity is calculated as the average of four items assessing participants' worst, least, current, and average (in the last week) pain on a scale from 0 "no pain" to 10 "worst pain." Pain interference is computed as the average of seven items, which ask about the interference of pain across different li

Pain Severity
GroupValue95% CI
Pre-Intervention2.1± 2
Post-Intervention1.7± 1.9
Pain Interference
GroupValue95% CI
Pre-Intervention2.2± 2.3
Post-Intervention1.9± 2.3
Change in Fatigue: PROMIS Fatigue Short Form Secondary · Baseline and again 3, 6, 9, and 12 months following the baseline assessment, pre-intervention (baseline for Intervention, 6 months for Waitlist Control) and post-intervention (3 months for Intervention, 9 months for Waitlist Control) reported

Fatigue will be assessed using the Patient Reported Outcomes Measurement Information System Fatigue Scale, a 6-item self-report measure of fatigue. Participants are asked to think about the last week when responding to each item (e.g., "In the past 7 days, how run-down did you feel, on average?"). Items are summed and converted to standardized t-scores with a mean of 50 and standard deviation of 10. A higher score indicates greater fatigue. T-scores of 55 to 60 indicate mild levels of fatigue, 60 to 70 indicates moderate levels of fatigue, and greater than 70 indicate severe levels of fatigue.

GroupValue95% CI
Pre-Intervention54± 10.8
Post-Intervention55.4± 9.3

Sponsor's own description

Symptom interference is common for survivors of young adult cancer (aged 18-39 at diagnosis) and impacts their abilities to achieve normative life goals (e.g., education, careers, independence, romantic/social relationships) as well as adhere to recommended follow-up care. Assistance with symptom management has been rated by young adult survivors as an important and unmet healthcare need; however, skill-based symptom management interventions have typically been tested among older cancer survivors and have not targeted the unique developmental needs of those diagnosed as young adults. The proposed research advances the health and wellbeing of young adult cancer survivors by creating a developmentally appropriate hybrid in-person/mHealth behavioral symptom management intervention which addresses variables (i.e., symptoms and symptom interference) consistently linked to significant social, economic, and health burden.

Publications & conference data

3 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Improving Symptom Management for Survivors of Young Adult Cancer: Development of a Novel Intervention.
    Dorfman CS, Shelby RA, Stalls JM, Somers TJ, et al · · 2023 · cited 9× · PMID 36178972 · DOI 10.1089/jayao.2022.0100
  2. Symptom Communication Preferences and Communication Barriers for Young Adult Cancer Survivors and Their Health Care Providers.
    Dorfman CS, Stalls J, Lachman S, Shelby RA, et al · · 2022 · cited 3× · PMID 35049386 · DOI 10.1089/jayao.2021.0172
  3. Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial.
    Dorfman CS, Shelby RA, Stalls JM, Thomas SM, et al · · 2024 · cited 2× · PMID 38851732 · DOI 10.1186/s40814-024-01510-7

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Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing