Last reviewed · How we verify
NCT03780153
The Norwegian Adult Achondroplasia Study
trial testing No intervention in Achondroplasia in 50 participants. Completed in 21 March 2022.
31 March 2019
Quick facts
| Lead sponsor | Sunnaas Rehabilitation Hospital |
|---|---|
| Status | Completed |
| Study type | OBSERVATIONAL |
| Enrollment | 50 |
| Start date | 1 March 2017 |
| Primary completion | 31 March 2019 |
| Estimated completion | 21 March 2022 |
| Sites | 1 location across Norway |
Drugs / interventions tested
- No intervention
Conditions studied
- Achondroplasia — all drugs for Achondroplasia →
Sponsor
Sunnaas Rehabilitation Hospital
Who can join
16 and older, any sex, with Achondroplasia. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
The study aims to investigate the Norwegian adult achondroplasia population regarding degree and extent of symptoms and clinical manifestations and how this population manages in daily life, including demographics, physical function, and work participation.
Publications & conference data
5 peer-reviewed publications reference this trial (live from Europe PMC):
-
High prevalence of symptomatic spinal stenosis in Norwegian adults with achondroplasia: a population-based study.
Fredwall SO, Steen U, de Vries O, Rustad CF, et al · · 2020 · cited 33× · PMID 32450891 · DOI 10.1186/s13023-020-01397-6 -
Cardiovascular risk factors and body composition in adults with achondroplasia.
Fredwall SO, Linge J, Leinhard OD, Kjønigsen L, et al · · 2021 · cited 17× · PMID 33204020 · DOI 10.1038/s41436-020-01024-6 -
Obstructive sleep apnea in Norwegian adults with achondroplasia: a population-based study.
Fredwall SO, Øverland B, Berdal H, Berg S, et al · · 2021 · cited 10× · PMID 33827611 · DOI 10.1186/s13023-021-01792-7 -
Fat infiltration in the thigh muscles is associated with symptomatic spinal stenosis and reduced physical functioning in adults with achondroplasia.
Fredwall SO, Linge J, de Vries O, Leinhard OD, et al · · 2023 · cited 5× · PMID 36814258 · DOI 10.1186/s13023-023-02641-5 -
Hearing loss in Norwegian adults with achondroplasia.
Fredwall SO, Åberg B, Berdal H, Savarirayan R, et al · · 2021 · cited 5× · PMID 34736503 · DOI 10.1186/s13023-021-02095-7
Verify or expand the search:
- PubMed search for NCT03780153
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
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Other recruiting trials for Achondroplasia
Currently open trials in the same condition.
- NCT07301463 — A Study in Children With Achondroplasia · recruiting
- NCT06926491 — Evaluate the Efficacy and Safety of KK8398 in Patients With Achondroplasia(AOBA Study) · Phase 3 · recruiting
- NCT05328050 — Registry for Patients With Achondroplasia / Hypochondroplasia (OMPR-Ach/Hy) · recruiting
Other Sunnaas Rehabilitation Hospital trials
Trials by the same sponsor.
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Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT03780153 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Sunnaas Rehabilitation Hospital
- Last refreshed: 31 October 2022
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT03780153.
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