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NCT03648710

Community Health Workers and mHealth for Sickle Cell Disease Care

Completed NA Last updated 4 December 2024
What this trial tests

NA trial testing Peer Community Health Worker in Sickle Cell Disease in 405 participants. Completed in 31 August 2024.

Timeline
15 January 2019
Primary endpoint
31 August 2024
31 August 2024

Quick facts

Lead sponsorChildren's Hospital of Philadelphia
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationrandomized
Designparallel
Maskingdouble
Primary purposesupportive care
Enrollment405
Start date15 January 2019
Primary completion31 August 2024
Estimated completion31 August 2024
Sites5 locations across United States

Drugs / interventions tested

Conditions studied

Sponsor

Children's Hospital of Philadelphia

Who can join

17 and older, any sex, with Sickle Cell Disease. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

This study will compare the effectiveness of two self-management support interventions-Community Health Workers (CHW) and mobile health (mHealth)-versus enhanced usual care to improve health-related quality of life and acute care use for transitioning youth with sickle cell disease (SCD), and identify and quantify mediators and moderators of intervention treatment effects.

Publications & conference data

5 peer-reviewed publications reference this trial (live from Europe PMC):

  1. A program of transition to adult care for sickle cell disease.
    Saulsberry AC, Porter JS, Hankins JS. · · 2019 · cited 56× · PMID 31808907 · DOI 10.1182/hematology.2019000054
  2. Patient navigator programmes for children and adolescents with chronic diseases.
    Lalji R, Koh L, Francis A, Khalid R, et al · · 2024 · cited 7× · PMID 39382077 · DOI 10.1002/14651858.cd014688.pub2
  3. Community Health Worker and Mobile Health Interventions for Quality of Life Among Young Adults With Sickle Cell Disease: A Randomized Clinical Trial.
    Jan S, Steinway C, Belton T, Shults J, et al · · 2025 · cited 1× · PMID 41247734 · DOI 10.1001/jamanetworkopen.2025.43571
  4. The Community Health Workers and Mobile Health for Emerging Adults Transitioning Sickle Cell Disease Care (COMETS) Trial: Protocol for a Randomized Controlled Trial.
    Belton TD, Steinway CM, Teng O, Shults J, et al · · 2025 · cited 1× · PMID 40905609 · DOI 10.2196/69239
  5. Recruitment and retention of young adults with sickle cell disease.
    Belton T, Carbaugh L, Stevens E, Seide A, et al · · 2026 · PMID 41869584 · DOI 10.1016/j.hctj.2026.100133

Verify or expand the search:

Other recruiting trials for Sickle Cell Disease

Currently open trials in the same condition.

Other Children's Hospital of Philadelphia trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

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Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing