Who is sponsoring NCT03161171?

NCT03161171 is sponsored by University Hospital Heidelberg.

What drugs are being tested in NCT03161171?

Interventions in NCT03161171: This is an observational study.

What condition does NCT03161171 study?

NCT03161171 studies Mucopolysaccharidosis Type I, Mucopolysaccharidosis Type II, Mucopolysaccharidosis Type III, Behavior Disorders, Coping Behavior.

Is NCT03161171 still recruiting?

NCT03161171 is currently completed. Last updated 13 December 2017.

Last reviewed 2017-12-13 · How we verify

NCT03161171

Name: Drug Landscape Pharmaceutical Database
Creator: Drug Landscape
Published: 2026-01-01
License: https://creativecommons.org/licenses/by/4.0/

Parental Coping With Challenging Behavior in Mucopolysaccharidosis Type I-III

Completed Last updated 13 December 2017

What this trial tests

trial testing This is an observational study in Mucopolysaccharidosis Type I in 34 participants. Completed in 13 November 2017.

Timeline

6 July 2017

Primary endpoint
13 November 2017

13 November 2017

Quick facts

Lead sponsor	University Hospital Heidelberg
Status	Completed
Study type	OBSERVATIONAL
Enrollment	34
Start date	6 July 2017
Primary completion	13 November 2017
Estimated completion	13 November 2017
Sites	1 location across Germany

Drugs / interventions tested

This is an observational study

Conditions studied

Mucopolysaccharidosis Type I — all drugs for Mucopolysaccharidosis Type I →
Mucopolysaccharidosis Type II — all drugs for Mucopolysaccharidosis Type II →
Mucopolysaccharidosis Type III — all drugs for Mucopolysaccharidosis Type III →
Behavior Disorders — all drugs for Behavior Disorders →

Sponsor

University Hospital Heidelberg

Who can join

Under 18, any sex, with Mucopolysaccharidosis Type I or Mucopolysaccharidosis Type II. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

The study quantitates behavioral challenges in mucopolysaccharidosis type I-III and parental coping strategies

Publications & conference data

1 peer-reviewed publication reference this trial (live from Europe PMC):

Challenging behavior in mucopolysaccharidoses types I-III and day-to-day coping strategies: a cross sectional explorative study.
Hoffmann F, Hoffmann S, Kunzmann K, Ries M. · · 2020 · cited 18× · PMID 33008435 · DOI 10.1186/s13023-020-01548-9

Verify or expand the search:

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Other recruiting trials for Mucopolysaccharidosis Type I

Currently open trials in the same condition.

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Other University Hospital Heidelberg trials

Trials by the same sponsor.

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Verify against primary sources

ClinicalTrials.gov — authoritative US registry record
WHO ICTRP — international registry index
EU Clinical Trials Register
Sponsor press releases (Google)

Data sources for this page

Trial protocol + status: ClinicalTrials.gov NCT03161171 (US National Library of Medicine, public domain)
Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
Sponsor: as reported to ClinicalTrials.gov by University Hospital Heidelberg
Last refreshed: 13 December 2017

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT03161171.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing