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NCT07096206: EdeReaLife

Characteristics and Impacts of X-linked Hypohidrotic Ectodermal Dysplasia (XLHED) in Boys: An Observational International Study

Active, enrolled Last updated 31 July 2025
What this trial tests

trial in X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED) in 27 participants. Participants enrolled and being followed up; not accepting new ones.

Timeline
19 July 2023
Primary endpoint
19 November 2026
19 November 2026

Quick facts

Lead sponsorPierre Fabre Medicament
StatusActive, enrolled
Study typeOBSERVATIONAL
Enrollment27
Start date19 July 2023
Primary completion19 November 2026
Estimated completion19 November 2026
Sites2 locations across France, Germany

Conditions studied

Sponsor

Pierre Fabre Medicament — full company profile →

Who can join

Adults 0 to 11, male only, with X-Linked Hypohidrotic Ectodermal Dysplasia (XLHED). Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

This is an observational, multicentre, international study over a 2-year follow-up period. The aim of this study is to understand how XLHED affects the lives of young male patients and their families over time. By studying the natural course of the disease and its impact, the study could improve the understanding of the challenges faced by these patients and their families.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other Pierre Fabre Medicament trials

Trials by the same sponsor.

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Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT07096206.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing