CZI Rare As One: Co-designing an App and Wearable Based Compass for Rare Diseases

NCT06907953 COMPLETED

The CZI Rare As One study is a Chan Zuckerberg Initiative funded study that aims to co-design and pilot test unique symptom tracking and transmitting apps across 5 different sub-arms that includes individuals with Long COVID, Pancreatitis, Sarcoidosis, Vasolin-Containing Protein (VCP) disease and Primary Ciliary disease (PCD). This study aims to use multimodal digital health tools to enable patients to self-monitor their symptoms in passive and active ways.

Details

Lead sponsor	4YouandMe
Status	COMPLETED
Enrolment	239
Start date	Thu Feb 06 2025 00:00:00 GMT+0000 (Coordinated Universal Time)
Completion	Tue Jul 01 2025 00:00:00 GMT+0000 (Coordinated Universal Time)

Conditions

• Pancreatitis, Chronic
• Sarcoidosis
• VCP Disease
• Long COVID
• PCD
• Symptoms and Signs
• Wearables

Interventions

• Observational - no intervention

Countries

United States