Last reviewed · How we verify
NCT06645626: UHSQOLAPS
Utilisation of Health Services and Quality of Life in Patients With Atypical Parkinsonian Syndromes
trial in Progressive Supranuclear Palsy in 198 participants. Currently enrolling.
31 August 2026
Quick facts
| Lead sponsor | University Hospital Southampton NHS Foundation Trust |
|---|---|
| Status | Recruiting now |
| Study type | OBSERVATIONAL |
| Enrollment | 198 |
| Start date | 10 October 2022 |
| Primary completion | 31 August 2026 |
| Estimated completion | 15 July 2027 |
| Sites | 1 location across United Kingdom |
Conditions studied
- Progressive Supranuclear Palsy — all drugs for Progressive Supranuclear Palsy →
- Cortico Basal Degeneration — all drugs for Cortico Basal Degeneration →
- Multiple System Atrophy — all drugs for Multiple System Atrophy →
Sponsor
University Hospital Southampton NHS Foundation Trust
Who can join
18 and older, any sex, with Progressive Supranuclear Palsy or Cortico Basal Degeneration. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
The study will compare health care utilisation and quality of life for patients with progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy in different parts of the region that our specialist clinic operates in with different services as well as in other regions with no specialist clinics. This study aims to investigate which aspects of the service are most beneficial for the patients and to determine the influence of support services and specialty clinics on patients and their carers.
Publications & conference data
1 peer-reviewed publication reference this trial (live from Europe PMC):
-
MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy.
Fanciulli A, Caliò B, Schmidt S, Goebel G, et al · · 2026 · cited 3× · PMID 40411588 · DOI 10.1007/s00702-025-02933-z
Verify or expand the search:
- PubMed search for NCT06645626
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other recruiting trials for Progressive Supranuclear Palsy
Currently open trials in the same condition.
- NCT06588673 — Art Therapy in Progressive Supranuclear Palsy · NA · active not recruiting
- NCT06647641 — The CurePSP Genetics Program · recruiting
- NCT06174948 — The Use of the CUE1/CUE1+ in People With Parkinson's Disease and Related Disorders · NA · recruiting
- NCT06122662 — AMX0035 and Progressive Supranuclear Palsy · Phase 2, PHASE3 · active not recruiting
- NCT05956834 — A Multi-Modal Remote Monitoring Platform for Frontotemporal Lobar Degeneration (FTLD) Syndromes · active not recruiting
Other University Hospital Southampton NHS Foundation Trust trials
Trials by the same sponsor.
- NCT07354971 — IMMUNO-FIT Observational Study · not yet recruiting
- NCT07278622 — Virtual Group Prehabilitation Education (Surgery School) Feasibility Trial · NA · recruiting
- NCT07357558 — A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary · recruiting
- NCT06851715 — Improving Quality of Life for Teenagers With Asthma · NA · recruiting
- NCT07489677 — The Feasibility and Acceptability of a Collaborative Deprescribing Intervention to Reduce Anticholinergic Burden Among H · NA · completed
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT06645626 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by University Hospital Southampton NHS Foundation Trust
- Last refreshed: 17 October 2024
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT06645626.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing