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NCT06583525

Evaluation of the TAC Program

ENROLLING BY INVITATION NA Last updated 4 September 2024
What this trial tests

NA trial testing Intensive Transition Support in Youth with Multimorbidity or Rare Dieases in 126 participants. Enrolling by invitation.

Timeline
16 August 2024
Primary endpoint
31 May 2027
31 May 2027

Quick facts

Lead sponsorThe Hospital for Sick Children
PhaseNA
StatusENROLLING BY INVITATION
Study typeINTERVENTIONAL
Allocationna
Designsingle group
Maskingnone
Primary purposetreatment
Enrollment126
Start date16 August 2024
Primary completion31 May 2027
Estimated completion31 May 2027
Sites1 location across Canada

Drugs / interventions tested

Conditions studied

Sponsor

The Hospital for Sick Children

Who can join

Adults 16 to 18, any sex, with Youth with Multimorbidity or Rare Dieases. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

This is a mixed-methods evaluative study examining the effectiveness of the Transition to Adult Care Program at the Hospital for Sick Children (TAC) Program on high-risk youth with medical and psychosocial complexity transitioning to adult and/or primary care services. The overarching aim is to study the effectiveness of a new interdisciplinary and holistic Transition to Adult Care Program (TAC) on health-related outcomes for high-risk youth with multimorbidity or rare diseases and their caregivers by: 1. Assess the effect of the TAC program on the youth's transition readiness, self-efficacy, self-management, health-related quality of life, and satisfaction. 2. Assess the effect of the TAC program on the caregiver's satisfaction. 3. Explore the experiences, perceptions, needs, and priorities of youth and caregivers participating in the TAC program using qualitative research methods. 4. Describe the feasibility of the TAC program (defined as success in patient recruitment, attendance, participation, retention and transfer).

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing