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NCT06065527
Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers
NA trial testing Map Our Life in Intellectual Disability in 1,050 participants. Currently enrolling.
30 June 2027
Quick facts
| Lead sponsor | Northwell Health |
|---|---|
| Phase | NA |
| Status | Recruiting now |
| Study type | INTERVENTIONAL |
| Allocation | randomized |
| Design | parallel |
| Masking | none |
| Primary purpose | health services research |
| Enrollment | 1,050 |
| Start date | 22 December 2023 |
| Primary completion | 30 June 2027 |
| Estimated completion | 30 April 2029 |
| Sites | 1 location across United States |
Drugs / interventions tested
- Map Our Life
- Attention Control
Conditions studied
- Intellectual Disability — all drugs for Intellectual Disability →
Sponsor
Northwell Health — full company profile →
Who can join
18 and older, any sex, with Intellectual Disability. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.
Publications & conference data
1 peer-reviewed publication reference this trial (live from Europe PMC):
-
Innovative Web-Based Future Planning and Well-Being for Caregivers of Individuals With Intellectual and Developmental Disabilities: Protocol of a Pragmatic Randomized Controlled Trial.
Steinway C, Wright C, Kwak S, Teng O, et al · · 2025 · cited 1× · PMID 41032360 · DOI 10.2196/77184
Verify or expand the search:
- PubMed search for NCT06065527
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
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Currently open trials in the same condition.
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Other Northwell Health trials
Trials by the same sponsor.
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Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT06065527 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 9 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Northwell Health
- Last refreshed: 3 January 2024
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT06065527.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing