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NCT06032676: NECqual

Qualitative Study of Surgeons With Prospective Patient Follow-up

Recruiting now Last updated 18 April 2024
What this trial tests

trial in Necrotizing Enterocolitis in 75 participants. Currently enrolling.

Timeline
1 January 2024
Primary endpoint
1 October 2025
1 October 2028

Quick facts

Lead sponsorUniversity Hospital Southampton NHS Foundation Trust
StatusRecruiting now
Study typeOBSERVATIONAL
Enrollment75
Start date1 January 2024
Primary completion1 October 2025
Estimated completion1 October 2028
Sites1 location across United Kingdom

Conditions studied

Sponsor

University Hospital Southampton NHS Foundation Trust

Who can join

Under 4 Months, any sex, with Necrotizing Enterocolitis. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Necrotising enterocolitis (NEC) is a devastating disease which causes severe bowel inflammation resulting in babies becoming critically unwell. It mainly affects premature babies (who can be born as early as 22 weeks) in the first few weeks of life. A quarter of babies don't respond to intensive care treatment and require surgery to remove bowel which has died to prevent them from getting sicker. Sadly, about a third of the most unwell babies don't survive and those that do have a high incidence of significant long-term health problems. Deciding which babies will benefit from surgery is challenging and there are no objective methods used to do this currently. Surgeons must weigh up the risks and benefits of performing major surgery on a tiny baby in the knowledge that surgery itself may cause harm. This uncertainty causes delays in performing surgery. Those that have a delay are more likely to have a poor outcome. In order to improve these unfavourable outcomes it is essential to understand and define current practice in detail (i.e. indications and timing for surgery) and understand how this may be associated with outcome. These outcomes are both short term, including mortality and ability to tolerate enteral nutrition, and long term which include neurodevelopmental outcomes at 2 years of life. To do this the investigators will undertake a multicentre mixed methods study with qualitative interview of consultant paediatric surgeons shortly after making a decision to operate, or not, on a baby with NEC. The investigators will then take consent from the parents/guardian of the infant to follow-up their clinical outcomes using data linkage to routinely collected data, within the national neonatal research database. Outcomes of interest include survival, feeding outcomes, further surgical procedures and neurodevelopment at 2 years.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other recruiting trials for Necrotizing Enterocolitis

Currently open trials in the same condition.

Other University Hospital Southampton NHS Foundation Trust trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT06032676.

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