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NCT05951790: LOPD01

Inspiratory Muscle Training (IMT) in Adult People With Pompe Disease

Status unknown NA Last updated 19 July 2023
What this trial tests

NA trial testing Inspiratory Muscle Training (IMT) in Glycogen Storage Disease Type II in 20 participants. Status unknown.

Timeline
1 March 2023
Primary endpoint
1 June 2023
1 April 2024

Quick facts

Lead sponsorFondazione Don Carlo Gnocchi Onlus
PhaseNA
StatusStatus unknown
Study typeINTERVENTIONAL
Allocationrandomized
Designcrossover
Maskingnone
Primary purposetreatment
Enrollment20
Start date1 March 2023
Primary completion1 June 2023
Estimated completion1 April 2024
Sites1 location across Italy

Drugs / interventions tested

Conditions studied

Sponsor

Fondazione Don Carlo Gnocchi Onlus — full company profile →

Who can join

18 and older, any sex, with Glycogen Storage Disease Type II or Pompe Disease (Late-onset). Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

The goal of this multicentre, randomized and controlled cross-over trial is to evaluate the efficacy of a programme of Inspiratory Muscle Training in subjects with Late On-set Pompe Disease (LOPD). The main question is to: * verify changes in Forced Vital Capacity, Postural Drop, Maximal Inspiratory Pressure, Maximal Expiratory Pressure, Peak expiratory cough pressure, Maximal Inspiratory Capacity, six- minute walk test and or 6-minute pegboard ring test.- * measure changes in some questionnaries investigating dispnoea and quality of life (Short-Form 36, Individualized-Neuromuscular-Quality-of-Life, Maugeri-Respiratory-Failure 28, Borg scale, Dispnoea 12, Mulditimensional Dispnea Profile, modified Medical Research Council, Fatigue Severity Scale, Epsworth Scale, Visual Analogue Scale). Measurement will take place at baseline and after one, three, four, six and twelve months. Participants will undergo a specific treatment consisting of aerobic exercise and Inspiratory Muscle Training with Powerbreathe device or Air-Stacking. Researchers will study if Powerbreathe device is more effective than Air-stacking maneuvres

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other trials of Inspiratory Muscle Training (IMT)

Trials testing the same drug.

Other recruiting trials for Glycogen Storage Disease Type II

Currently open trials in the same condition.

Other Fondazione Don Carlo Gnocchi Onlus trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

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