Last reviewed · How we verify
NCT05950750
Turkey Thrombotic Thrombocytopenic Purpura Disease Registry: National Multicenter Study
trial in TTP - Thrombotic Thrombocytopenic Purpura in 960 participants. Currently enrolling.
21 December 2023
Quick facts
| Lead sponsor | Turkish Hematology Association |
|---|---|
| Status | Recruiting now |
| Study type | OBSERVATIONAL |
| Enrollment | 960 |
| Start date | 21 December 2022 |
| Primary completion | 21 December 2023 |
| Estimated completion | 21 December 2026 |
| Sites | 1 location across Turkey (Türkiye) |
Conditions studied
- TTP - Thrombotic Thrombocytopenic Purpura — all drugs for TTP - Thrombotic Thrombocytopenic Purpura →
Sponsor
Turkish Hematology Association
Who can join
18 and older, any sex, with TTP - Thrombotic Thrombocytopenic Purpura. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
21 hematology centers in Turkey will participate in this noninterventional observational study. The recruitment target is 960 cases. Patients will be followed-up at least 1 year or to the end of the study according to the physicians' discretion, or withdrawal of consent. Recruitment period will be 36 months. Data will be collected via electronic case report form. Since the study cohort does not include only newly diagnosed patients, all aTTP patients will be included to the study, previous treatments and diagnosis information data could also be collected from hospital records. Patients recruitment duration: 3 years (36 months) Patients follow-up duration: 1 year (12 months)
Publications & conference data
1 peer-reviewed publication reference this trial (live from Europe PMC):
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Clinical Manifestations, Treatment Characteristics, and Clinical Outcomes in Patients with Immune Thrombotic Thrombocytopenic Purpura (iTTP) in a Real-World Setting: An Interim Analysis of the Turkish iTTP Registry
Karakuş S, Bakanay ŞM, Kalayoğlu Beşişik S, Eşkazan AE, et al · · 2025 · PMID 40699136 · DOI 10.4274/tjh.galenos.2025.2025.0134
Verify or expand the search:
- PubMed search for NCT05950750
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other recruiting trials for TTP - Thrombotic Thrombocytopenic Purpura
Currently open trials in the same condition.
- NCT06376786 — Italian iTTP Registry · recruiting
- NCT05571774 — Construction of a Database for TTP · recruiting
Other Turkish Hematology Association trials
Trials by the same sponsor.
- NCT05979675 — Acute Myeloid Leukemia Registry · recruiting
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT05950750 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Turkish Hematology Association
- Last refreshed: 18 July 2023
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05950750.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing