Last reviewed · How we verify

NCT05950750

Turkey Thrombotic Thrombocytopenic Purpura Disease Registry: National Multicenter Study

Recruiting now Last updated 18 July 2023
What this trial tests

trial in TTP - Thrombotic Thrombocytopenic Purpura in 960 participants. Currently enrolling.

Timeline
21 December 2022
Primary endpoint
21 December 2023
21 December 2026

Quick facts

Lead sponsorTurkish Hematology Association
StatusRecruiting now
Study typeOBSERVATIONAL
Enrollment960
Start date21 December 2022
Primary completion21 December 2023
Estimated completion21 December 2026
Sites1 location across Turkey (Türkiye)

Conditions studied

Sponsor

Turkish Hematology Association

Who can join

18 and older, any sex, with TTP - Thrombotic Thrombocytopenic Purpura. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

21 hematology centers in Turkey will participate in this noninterventional observational study. The recruitment target is 960 cases. Patients will be followed-up at least 1 year or to the end of the study according to the physicians' discretion, or withdrawal of consent. Recruitment period will be 36 months. Data will be collected via electronic case report form. Since the study cohort does not include only newly diagnosed patients, all aTTP patients will be included to the study, previous treatments and diagnosis information data could also be collected from hospital records. Patients recruitment duration: 3 years (36 months) Patients follow-up duration: 1 year (12 months)

Publications & conference data

1 peer-reviewed publication reference this trial (live from Europe PMC):

  1. Clinical Manifestations, Treatment Characteristics, and Clinical Outcomes in Patients with Immune Thrombotic Thrombocytopenic Purpura (iTTP) in a Real-World Setting: An Interim Analysis of the Turkish iTTP Registry
    Karakuş S, Bakanay ŞM, Kalayoğlu Beşişik S, Eşkazan AE, et al · · 2025 · PMID 40699136 · DOI 10.4274/tjh.galenos.2025.2025.0134

Verify or expand the search:

Other recruiting trials for TTP - Thrombotic Thrombocytopenic Purpura

Currently open trials in the same condition.

Other Turkish Hematology Association trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05950750.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing