Last reviewed · How we verify
NCT05939232
Registry of X-linked Adrenoleukodystrophy
trial in X-linked Adrenoleukodystrophy in 200 participants. Currently enrolling.
1 December 2028
Quick facts
| Lead sponsor | Beijing Tiantan Hospital |
|---|---|
| Status | Recruiting now |
| Study type | OBSERVATIONAL |
| Enrollment | 200 |
| Start date | 20 July 2023 |
| Primary completion | 1 December 2028 |
| Estimated completion | 1 December 2028 |
| Sites | 1 location across China |
Conditions studied
- X-linked Adrenoleukodystrophy — all drugs for X-linked Adrenoleukodystrophy →
Sponsor
Beijing Tiantan Hospital
Who can join
Adults 6 to 70, any sex, with X-linked Adrenoleukodystrophy. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
This study is a observational study conducted through recruiting X-linked adrenoleukodystrophy (X-ALD) patients, to build a comprehensive evaluation and long-term follow-up platform for X-ALD patients, and to provide a theoretical basis for the treatment and management of X-ALD patients.
Publications & conference data
1 peer-reviewed publication reference this trial (live from Europe PMC):
-
Elivaldogene autotemcel approved for treatment of cerebral adrenoleukodystrophy (CALD) in males: A therapeutics bulletin of the American College of Medical Genetics and Genomics (ACMG).
Scott AI, Mallhi KK, Ganesh J, Chen WL, et al · · 2023 · cited 4× · PMID 39669257 · DOI 10.1016/j.gimo.2023.100835
Verify or expand the search:
- PubMed search for NCT05939232
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other recruiting trials for X-linked Adrenoleukodystrophy
Currently open trials in the same condition.
- NCT03727555 — IT and IV Lentiviral Gene Therapy for X-ALD · NA · recruiting
- NCT04675749 — Quality of Life in Women with X-linked Adrenoleukodystrophy · recruiting
- NCT03047369 — The Myelin Disorders Biorepository Project · recruiting
Other Beijing Tiantan Hospital trials
Trials by the same sponsor.
- NCT07341854 — Dexamethasone Palmitate for Postoperative Pain · NA · not yet recruiting
- NCT07527013 — Stratified Blood Pressure Management Strategy After Endovascular Treatment for Acute Ischemic Stroke · Phase 3 · not yet recruiting
- NCT07520370 — Effect of Perioperative Ulinastatin on Postoperative Stroke in Patients With Brain Tumor · NA · not yet recruiting
- NCT07526987 — Efficacy and Safety of Minocycline in Patients With Acute Ischaemic Stroke Receiving Intravenous Thrombolysis · Phase 3 · not yet recruiting
- NCT07591207 — The Efficacy and Safety of Loxoprofen Sodium Patch in Relieving Postoperative Pain After Laparoscopic Surgery · NA · not yet recruiting
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT05939232 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Beijing Tiantan Hospital
- Last refreshed: 11 July 2023
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05939232.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing