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NCT05902351

Natural History Study for Charcot Marie Tooth Disease

Recruiting now Last updated 1 October 2024
What this trial tests

trial in Charcot-Marie-Tooth Disease in 10,000 participants. Currently enrolling.

Timeline
1 November 2013
Primary endpoint
31 December 2029
31 December 2029

Quick facts

Lead sponsorHereditary Neuropathy Foundation
StatusRecruiting now
Study typeOBSERVATIONAL
Enrollment10,000
Start date1 November 2013
Primary completion31 December 2029
Estimated completion31 December 2029
Sites1 location across United States

Conditions studied

Sponsor

Hereditary Neuropathy Foundation

Who can join

Eligibility, any sex, with Charcot-Marie-Tooth Disease or Charcot-Marie-Tooth. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other recruiting trials for Charcot-Marie-Tooth Disease

Currently open trials in the same condition.

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Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05902351.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing