Last reviewed · How we verify
NCT05902351
Natural History Study for Charcot Marie Tooth Disease
trial in Charcot-Marie-Tooth Disease in 10,000 participants. Currently enrolling.
31 December 2029
Quick facts
| Lead sponsor | Hereditary Neuropathy Foundation |
|---|---|
| Status | Recruiting now |
| Study type | OBSERVATIONAL |
| Enrollment | 10,000 |
| Start date | 1 November 2013 |
| Primary completion | 31 December 2029 |
| Estimated completion | 31 December 2029 |
| Sites | 1 location across United States |
Conditions studied
- Charcot-Marie-Tooth Disease — all drugs for Charcot-Marie-Tooth Disease →
- Charcot-Marie-Tooth — all drugs for Charcot-Marie-Tooth →
- Charcot-Marie-Tooth Disease, Type IA — all drugs for Charcot-Marie-Tooth Disease, Type IA →
- Charcot-Marie-Tooth Disease Type 2A — all drugs for Charcot-Marie-Tooth Disease Type 2A →
Sponsor
Hereditary Neuropathy Foundation
Who can join
Eligibility, any sex, with Charcot-Marie-Tooth Disease or Charcot-Marie-Tooth. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.
Publications & conference data
No peer-reviewed publications indexed yet for this trial.
Verify or expand the search:
- PubMed search for NCT05902351
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other recruiting trials for Charcot-Marie-Tooth Disease
Currently open trials in the same condition.
- NCT06203093 — Charcot-Marie-Tooth Disease (CMT) Biological Sample Collection for IPSC Generation and Biobanking · recruiting
- NCT04762758 — Phase III Trial Assessing the Efficacy and Safety of PXT3003 in CMT1A Patients · Phase 3 · active not recruiting
- NCT04010188 — A Registered Cohort Study on Charcot-Marie-Tooth Disease · recruiting
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT05902351 (US National Library of Medicine, public domain)
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Hereditary Neuropathy Foundation
- Last refreshed: 1 October 2024
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05902351.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing