The KidneyCARE (Community Access to Research Equity) Study

NCT05497518 RECRUITING

For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyCARE Study is a non-interventional research study which means participants will not have to take medications or do any additional tests to participate. They are simply asked to share some personal and health information, and their experiences with their disease through a secure portal. The Study also collaborates with health systems to obtain additional electronic health records (EHR) data. This unique combination of data collected will address the gap of individualized educational resources and will enhance clinical research, clinical care, and health policy decisions to be centered on the patient. The Study is all online and can be accessed any time of day at kidneycarestudy.org. Participation is voluntary and free.

Details

Lead sponsor	Tufts Medical Center
Status	RECRUITING
Enrolment	50000
Start date	Thu Feb 25 2021 00:00:00 GMT+0000 (Coordinated Universal Time)
Completion	Mon Feb 24 2070 00:00:00 GMT+0000 (Coordinated Universal Time)

Conditions

• Chronic Kidney Disease
• Dialysis
• Kidney Transplant

Interventions

• Observational study - registry

Countries

United States