Last reviewed · How we verify
NCT05231876: WIL-FR
French Wilson Disease Registry
trial testing Recording of pathology-related information on the Wilson Register in Wilson Disease in 1,000 participants. Currently enrolling.
1 January 2030
Quick facts
| Lead sponsor | Fondation Ophtalmologique Adolphe de Rothschild |
|---|---|
| Status | Recruiting now |
| Study type | OBSERVATIONAL |
| Enrollment | 1,000 |
| Start date | 1 January 2005 |
| Primary completion | 1 January 2030 |
| Estimated completion | 1 January 2030 |
| Sites | 1 location across France |
Drugs / interventions tested
- Recording of pathology-related information on the Wilson Register
Conditions studied
- Wilson Disease — all drugs for Wilson Disease →
Sponsor
Fondation Ophtalmologique Adolphe de Rothschild — full company profile →
Who can join
Adults 0 to 99, any sex, with Wilson Disease. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
This registry concerns adults and children with Wilson's disease. The collection of a large amount of data will allow a better understanding of the epidemiology of this rare disease, in particular the age of onset according to the hepatic or hepato-neurological forms, but also the geographical distribution of patients consulting in France. This database will also make it possible to know all the therapies prescribed to "Wilsonian" patients. The genetic study of these patients will make it possible to specify the various genetic mutations involved in Wilson's disease. The information (clinical, biological, radiological and genetic) relating to the disease will be entered by a doctor or a professional specialising in Wilson's disease.
Publications & conference data
1 peer-reviewed publication reference this trial (live from Europe PMC):
-
Diagnostic Accuracy of Exchangeable Copper for Grading the Severity of Wilson Disease.
Desjardins C, Oussedik-Djebrani N, Obadia MA, Rahli D, et al · · 2026 · PMID 41952595 · DOI 10.1002/jimd.70178
Verify or expand the search:
- PubMed search for NCT05231876
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other recruiting trials for Wilson Disease
Currently open trials in the same condition.
- NCT07301216 — Off Treatment Urinary Copper Excretion in Wilson Disease, Pilot Study · recruiting
- NCT06430359 — Circadian Variation of Urinary Copper Excretion in Wilson Disease Patients · recruiting
- NCT06650319 — A Clinical Study to Evaluate the Safety and Efficacy of LY-M003 Injection in Patients With Wilson Disease · EARLY_PHASE1 · recruiting
- NCT06573723 — Institutional Registry of Rare Diseases · recruiting
- NCT03334292 — Natural History of Wilson Disease · recruiting
Other Fondation Ophtalmologique Adolphe de Rothschild trials
Trials by the same sponsor.
- NCT04701619 — Immuno-inflammatory Profile and Response to Ischemic Stroke Reperfusion Therapies (IMMUNOSTROKE) · NA · not yet recruiting
- NCT04763161 — Immuno-inflammation in the Acute Phase of an Ischaemic Cerebral Accident Managed by Decompressive Hemicraniectomy: a Cas · not yet recruiting
- NCT06264531 — Efficacy and Safety of Anti-angiogenic Therapy With IV Bevacizumab in Patients With Symptomatic Cerebral Arteriovenous M · Phase 2, PHASE3 · recruiting
- NCT06895044 — Evolution of Ocular Growth in Myopic Children: A Prospective Cohort Study · recruiting
- NCT06644196 — Creation of a Database of Images of the Eye With the Holographic Doppler Laser · recruiting
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT05231876 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Fondation Ophtalmologique Adolphe de Rothschild
- Last refreshed: 5 December 2024
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT05231876.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing