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NCT04964414

Treatment of Pediatric Patients That Lost Sense of Smell Due to COVID-19

Terminated Phase 1, PHASE2 Results posted Last updated 13 June 2024
What this trial tests

Phase 1, PHASE2 trial testing Smell Retraining in Dysosmia in 20 participants. Terminated before completion.

Timeline
30 September 2021
Primary endpoint
13 January 2023
29 March 2023

Quick facts

Lead sponsorAmanda Stapleton
PhasePhase 1, PHASE2
StatusTerminated
Study typeINTERVENTIONAL
Allocationrandomized
Designparallel
Maskingnone
Primary purposetreatment
Enrollment20
Start date30 September 2021
Primary completion13 January 2023
Estimated completion29 March 2023
Sites1 location across United States

Drugs / interventions tested

Conditions studied

Sponsor

Amanda Stapleton

Who can join

Adults 6 to 21, any sex, with Dysosmia or Anosmia. Patients with the condition only — healthy volunteers not accepted.

Results — posted to ClinicalTrials.gov

Per-arm endpoint measurements with 95% confidence intervals where reported. Source: trial results section.

Change in University of Pennsylvania Smell Identification Test (UPSIT) Score From Baseline to First Follow-up Primary · Before and after 8-12 weeks of smell retraining

Change in University of Pennsylvania Smell Identification Test (UPSIT) score from baseline at the initial consult appointment to the first follow-up appointment at 8 weeks (range 8 to 12 weeks). The UPSIT is a smell identification test and is a 40-item scratch and sniff test with a four-choice multiple choice question on each of the 10 pages in the booklet. Indication of smell loss can be determined - anosmia (total loss) and mild, moderate, or severe microsomia and a detection for malingering. The minimum possible score is a 0 and the maximum is a 40. A higher score indicates better smell/out

Before smell retraining
GroupValue95% CI
Smell Retraining Only23.3± 7.3
Smell Retraining + Budesonide34
After 8-12 weeks of smell retraining
GroupValue95% CI
Smell Retraining Only22.3± 7.3
Smell Retraining + Budesonide35
Change in Sino-nasal Outcome Test-22 (SNOT-22) Score From Baseline to First Follow-up Secondary · Before and after 8-12 weeks of smell retraining

Change in Sino-nasal Outcome Test-22 (SNOT-22) score from baseline at the initial consult appointment to the first follow-up appointment at 8 weeks (range 8 to 12 weeks). The SNOT-22 is a 22 question survey that asks about symptoms and social/emotional consequences of a nasal disorder. The survey is on a 6 point scale - No problem (0), very mild problem (1), mild or slight problem (2), moderate problem (3), severe problem (4), and problem as bad as it can be (5). The minimum possible score is 0 and the maximum is 110. A higher score indicates more sino-nasal symptoms/worse outcome.

Before smell retraining
GroupValue95% CI
Smell Retraining Only2310 – 41
Smell Retraining + Budesonide37
After 8-12 weeks of smell retraining
GroupValue95% CI
Smell Retraining Only2511 – 37
Smell Retraining + Budesonide39
Change in Loss of Smell Question Score From Baseline to First Follow-up Secondary · Before and after 8-12 weeks of smell retraining

Change in loss of smell on a 0-10 scale from baseline at the initial consult appointment to the first follow-up appointment at 8 weeks (range 8 to 12 weeks). Subjects are asked to rate the symptom severity of loss of smell from 0 (no loss) to 10 (total loss). A higher score indicates worse smell/outcome.

Before smell retraining
GroupValue95% CI
Smell Retraining Only6.0± 3.3
Smell Retraining + Budesonide6.0
After 8-12 weeks of smell retraining
GroupValue95% CI
Smell Retraining Only5.0± 3.7
Smell Retraining + Budesonide8.0
Change in University of Pennsylvania Smell Identification Test (UPSIT) Score From Baseline to 6 Month Follow-up Secondary · Baseline and 6 months after initial consult appointment

Change in University of Pennsylvania Smell Identification Test (UPSIT) score from baseline at the initial consult appointment to the 6 month follow-up appointment. The minimum possible score is a 0 and the maximum is a 40. A higher score indicates better smell/outcome.

Before smell retraining
GroupValue95% CI
Smell Retraining Only1513 – 21
After 6 months of smell retraining
GroupValue95% CI
Smell Retraining Only1714 – 24
Change in Sino-nasal Outcome Test-22 (SNOT-22) Score From Baseline to 6 Month Follow-up Secondary · Baseline and 6 months after initial consult appointment

Change in Sino-nasal Outcome Test-22 (SNOT-22) score from baseline at the initial consult appointment to the 6 month follow-up appointment. The minimum possible score is 0 and the maximum is 110. A higher score indicates more sino-nasal symptoms/worse outcome.

Before smell retraining
GroupValue95% CI
Smell Retraining Only2515 – 41
After 6 months of smell retraining
GroupValue95% CI
Smell Retraining Only98 – 14
Change in Loss of Taste Question Score From Baseline to First Follow-up Secondary · Before and after 8-12 weeks of smell retraining

Change in loss of taste on a 0-10 scale from baseline at the initial consult appointment to the first follow-up appointment at 8 weeks (range 8 to 12 weeks). Subjects are asked to rate the symptom severity of loss of taste from 0 (no loss) to 10 (total loss). A higher score indicates less taste/worse outcome.

Before smell retraining
GroupValue95% CI
Smell Retraining Only3.6± 3.8
Smell Retraining + Budesonide6.0
After 8-12 weeks of smell retraining
GroupValue95% CI
Smell Retraining Only1.6± 2.1
Smell Retraining + Budesonide8.0
Change in Anxiety Question Score From Baseline to First Follow-up Secondary · Before and after 8-12 weeks of smell retraining

Change in anxiety on a 0-10 scale from baseline at the initial consult appointment to the first follow-up appointment at 8 weeks (range 8 to 12 weeks). Subjects are asked to rate the symptom severity of anxiety from 0 (no anxiety) to 10 (worst possible anxiety). A higher score indicates more anxiety/worse outcome.

Before smell retraining
GroupValue95% CI
Smell Retraining Only5.0± 4.4
Smell Retraining + Budesonide7.0
After 8-12 weeks of smell retraining
GroupValue95% CI
Smell Retraining Only3.4± 4.4
Smell Retraining + Budesonide8.5

Sponsor's own description

This research study is a randomized controlled trial in pediatric and young adult patients who have lost their sense of smell due to COVID-19 viral infection. The goals are: 1. to learn more about the effects of smell retraining therapy on smell loss following COVID-19 and 2. to determine if budesonide-saline irrigations make smell retraining therapy more effective.

Publications & conference data

5 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Interventions for the prevention of persistent post-COVID-19 olfactory dysfunction.
    Webster KE, O'Byrne L, MacKeith S, Philpott C, et al · · 2021 · cited 22× · PMID 34291812 · DOI 10.1002/14651858.cd013877.pub2
  2. Interventions for the treatment of persistent post-COVID-19 olfactory dysfunction.
    O'Byrne L, Webster KE, MacKeith S, Philpott C, et al · · 2022 · cited 21× · PMID 36062970 · DOI 10.1002/14651858.cd013876.pub3
  3. Interventions for the treatment of persistent post-COVID-19 olfactory dysfunction.
    O'Byrne L, Webster KE, MacKeith S, Philpott C, et al · · 2021 · cited 21× · PMID 34291813 · DOI 10.1002/14651858.cd013876.pub2
  4. Interventions for the prevention of persistent post-COVID-19 olfactory dysfunction.
    Webster KE, O'Byrne L, MacKeith S, Philpott C, et al · · 2022 · cited 11× · PMID 36063364 · DOI 10.1002/14651858.cd013877.pub3
  5. A Randomized Controlled Trial on the Management of Post-COVID-19 Olfactory Dysfunction in a Pediatric Population.
    Hura N, Reddy PD, Shaffer A, Stapleton A. · · 2025 · cited 1× · PMID 40741582 · DOI 10.7759/cureus.87026

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Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing