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NCT04837976

Lifestyle and Non-motor Symptom Management in Parkinson's Disease

Terminated Last updated 11 March 2022
What this trial tests

trial testing Semi-structured interviews and a consensus workshops using nominal group techniques. in Parkinson Disease in 41 participants. Terminated before completion.

Timeline
14 May 2021
Primary endpoint
7 October 2021
7 October 2021

Quick facts

Lead sponsorOxford Brookes University
StatusTerminated
Study typeOBSERVATIONAL
Enrollment41
Start date14 May 2021
Primary completion7 October 2021
Estimated completion7 October 2021
Sites1 location across United Kingdom

Drugs / interventions tested

Conditions studied

Sponsor

Oxford Brookes University

Who can join

18 and older, any sex, with Parkinson Disease or Fatigue. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Parkinson's Disease (PD) has generally been thought of as a movement disorder however other health-related symptoms, known as non-motor symptoms, are also very common. Non-motor symptoms can be very broad and present in numerous conditions, making identifying the symptoms of early-stage Parkinson's disease very difficult. Non-motor symptoms, including fatigue, and problems with sleep and mood, can happen decades before motor symptoms and have a greater impact on quality of life and psychological wellbeing. Despite this treatment options for non-motor symptoms are limited and therefore the development and testing of new treatments is a main priority. Due to the limited treatments options available, self-management of symptoms through positive lifestyle changes is a warranted area of research. The perspectives amongst patients, caregivers, and HCP's regarding lifestyle behavior change and its impact on fatigue and related non-motor symptoms has yet to be investigated in detail. This study includes two stages: telephone interviews and online consensus workshops. Patients with PD whom have experience of fatigue, partners/caregivers and Healthcare professionals will be able to participate in interviews only, workshops only or both. The interviews will investigate patients, partners/caregivers and Healthcare Professionals views and priorities of lifestyle factors in the management of non-motor symptoms in Parkinson's disease as well as identifying factors that influence lifestyle changes amongst PD patients. Stage 2 will involve small consensus workshops to generate ideas and feedback related to the design and content of the soon-to be developed lifestyle program. Results from both stages of this study will be used to help develop and design a lifestyle management program for fatigue and associated non-motor symptoms in Parkinson's Disease.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other recruiting trials for Parkinson Disease

Currently open trials in the same condition.

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