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NCT04714658: MG-ETP

Education Program in Myasthenia

Status unknown NA Last updated 19 January 2021
What this trial tests

NA trial testing Therapeutic Education in Auto-immune Myasthenia in 100 participants. Status unknown.

Timeline
22 January 2021
Primary endpoint
22 May 2025
22 May 2025

Quick facts

Lead sponsorUniversity Hospital, Strasbourg, France
PhaseNA
StatusStatus unknown
Study typeINTERVENTIONAL
Allocationrandomized
Designparallel
Maskingnone
Primary purposesupportive care
Enrollment100
Start date22 January 2021
Primary completion22 May 2025
Estimated completion22 May 2025

Drugs / interventions tested

Conditions studied

Sponsor

University Hospital, Strasbourg, France

Who can join

18 and older, any sex, with Auto-immune Myasthenia. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Patient therapeutic education (PTE) has become "a must" in the modern management of chronic diseases. Its main objective is to improve compliance with treatment and the application of preventive measures. The main goal of this study is to assess the influence of the therapeutic education program on the perception of the disease in patients with autoimmune myasthenia. Secondary objectives are to assess quality of life, patient satisfaction of the PTE program, the acquisition of therapeutic goals and the influence of therapeutic education on the evolution of autoimmune myasthenia Study team hypothesize that therapeutic education could improve the patient's perception of myasthenia and its quality of life. By improving patient's adherence to treatments and his knowledge of the disease, it could also improve the evolution of myasthenia gravis. Study team suppose that PTE program can reduce the absenteeism at work, the number and duration of hospitalizations, particularly those in intensive care units.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other trials of Therapeutic Education

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Other University Hospital, Strasbourg, France trials

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Data sources for this page

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