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NCT04450927

Data Collection of Standard Care and Evaluation of NHLBI Patients and Donors

ENROLLING BY INVITATION Last updated 8 April 2026
What this trial tests

trial in Wide Spectrum of Diseases in 10,000 participants. Enrolling by invitation.

Timeline
16 June 2020
Primary endpoint
31 December 2040
31 December 2040

Quick facts

Lead sponsorNational Heart, Lung, and Blood Institute (NHLBI)
StatusENROLLING BY INVITATION
Study typeOBSERVATIONAL
Enrollment10,000
Start date16 June 2020
Primary completion31 December 2040
Estimated completion31 December 2040
Sites1 location across United States

Conditions studied

Sponsor

National Heart, Lung, and Blood Institute (NHLBI)

Who can join

Adults 2 to 120, any sex, with Wide Spectrum of Diseases or Hematologic Diseases. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Background: Researchers seek ways to study people s medical problems in order to teach and further general knowledge. The ability to assess and treat people with a wide range of diseases is critical to training people to be good doctors. It is also needed to keep medical staff up to date. In this study, researchers want to study the course of some illnesses to learn more about them. To do this, they will collect and review people s medical records. In some cases, they may also provide treatment. Objective: To collect data that may be used to help researchers create ideas for future research. Eligibility: People age 2 and older who have or are suspected to have a medical condition for which they have been referred to NIH s National Heart, Lung, and Blood Institute, as well as stem cell donors Design: Participants may be screened with a review of the following: Medical records Scans and images Other existing samples and reports. Participants medical data will be collected from the standard care they receive. This includes their routine blood and urine tests, X-rays and scans, and other tests to diagnose or follow their medical condition. Data will also be collected from the treatments they may receive. For stem cell donors, data from apheresis procedures will be collected. Demographic data will also be collected. All of the data will be kept in the medical records or on secure network drives. Some participants may need to be treated for their medical condition. If so, they will sign a separate consent form for that treatment. Participation lasts up to 2 years.

Publications & conference data

No peer-reviewed publications indexed yet for this trial.

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Other National Heart, Lung, and Blood Institute (NHLBI) trials

Trials by the same sponsor.

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Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT04450927.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing