Last reviewed · How we verify
NCT04256265
An Expanded Access Program for Risdiplam in Participants With Spinal Muscular Atrophy (SMA)
trial testing Risdiplam in Muscular Atrophy, Spinal. Approved for marketing.
Quick facts
| Lead sponsor | Genentech, Inc. |
|---|---|
| Status | APPROVED FOR MARKETING |
| Study type | EXPANDED_ACCESS |
| Sites | 29 locations across United States |
Drugs / interventions tested
- Risdiplam (RISDIPLAM) — full drug profile →
Conditions studied
- Muscular Atrophy, Spinal — all drugs for Muscular Atrophy, Spinal →
Sponsor
Genentech, Inc. — full company profile →
Who can join
2 Months and older, any sex, with Muscular Atrophy, Spinal. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
This expanded access program (EAP) will provide access to risdiplam for eligible participants with Type 1 or Type 2 spinal muscular atrophy (SMA) before it is commercially available in the United States for the indication of SMA.
Publications & conference data
7 peer-reviewed publications reference this trial (live from Europe PMC):
-
New Treatments in Spinal Muscular Atrophy: Positive Results and New Challenges.
Messina S, Sframeli M. · · 2020 · cited 86× · PMID 32668756 · DOI 10.3390/jcm9072222 -
An expanded access program of risdiplam for patients with Type 1 or 2 spinal muscular atrophy.
Kwon JM, Arya K, Kuntz N, Phan HC, et al · · 2022 · cited 31× · PMID 35567422 · DOI 10.1002/acn3.51560 -
Risdiplam in non-sitter patients aged 16 years and older with 5q spinal muscular atrophy.
Ñungo Garzón NC, Pitarch Castellano I, Sevilla T, Vázquez-Costa JF. · · 2023 · cited 27× · PMID 36815750 · DOI 10.1002/mus.27804 -
Drug Screening and Drug Repositioning as Promising Therapeutic Approaches for Spinal Muscular Atrophy Treatment.
Menduti G, Rasà DM, Stanga S, Boido M. · · 2020 · cited 27× · PMID 33281605 · DOI 10.3389/fphar.2020.592234 -
Emerging Gene Therapy Approaches in the Management of Spinal Muscular Atrophy (SMA): An Overview of Clinical Trials and Patent Landscape.
Ponomarev AS, Chulpanova DS, Yanygina LM, Solovyeva VV, et al · · 2023 · cited 22× · PMID 37762045 · DOI 10.3390/ijms241813743 -
Pharmacological Therapies of Spinal Muscular Atrophy: A Narrative Review of Preclinical, Clinical-Experimental, and Real-World Evidence.
Crisafulli S, Boccanegra B, Vitturi G, Trifirò G, et al · · 2023 · cited 11× · PMID 37891814 · DOI 10.3390/brainsci13101446 -
Risdiplam treatment following onasemnogene abeparvovec in individuals with spinal muscular atrophy: a multicenter case series.
Svoboda MD, Kuntz N, Leon-Astudillo C, Byrne BJ, et al · · 2025 · cited 3× · PMID 40624473 · DOI 10.1186/s12883-025-04276-4
Verify or expand the search:
- PubMed search for NCT04256265
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
Related trials
Other trials of Risdiplam
Trials testing the same drug.
- NCT05861999 — A Study Evaluating the Effectiveness and Safety of Risdiplam Administered in Pediatric Patients With Spinal Muscular Atr · Phase 4 · recruiting
- NCT05861986 — A Study Evaluating the Effectiveness and Safety of Risdiplam Administered as an Early Intervention in Pediatric Particip · Phase 4 · recruiting
- NCT05808764 — A Study to Investigate the Pharmacokinetics and Safety of Risdiplam in Infants With Spinal Muscular Atrophy · Phase 2 · recruiting
- NCT05522361 — Risdiplam in Patients With Spinal Muscular Atrophy Previously Treated With Nusinersen · Phase 4 · active not recruiting
- NCT06978985 — Adult SMA Research and Clinical Hub · recruiting
Other recruiting trials for Muscular Atrophy, Spinal
Currently open trials in the same condition.
- NCT07221669 — A Study to Learn About Salanersen's (BIIB115) Effects on Movement and Its Safety When Given Before Symptoms Appear in Ba · Phase 3 · recruiting
- NCT06555419 — A Study to Find Out How Nusinersen is Processed in the Body When Given Through the ThecaFlex DRx™ System in Adult and Pe · Phase 1 · recruiting
- NCT05861999 — A Study Evaluating the Effectiveness and Safety of Risdiplam Administered in Pediatric Patients With Spinal Muscular Atr · Phase 4 · recruiting
- NCT05861986 — A Study Evaluating the Effectiveness and Safety of Risdiplam Administered as an Early Intervention in Pediatric Particip · Phase 4 · recruiting
- NCT05808764 — A Study to Investigate the Pharmacokinetics and Safety of Risdiplam in Infants With Spinal Muscular Atrophy · Phase 2 · recruiting
Other Genentech, Inc. trials
Trials by the same sponsor.
- NCT06984341 — A Study to Evaluate the Safety, Tolerability, Cellular Kinetics, Pharmacodynamics, and Efficacy of P-CD19CD20-ALLO1 in P · Phase 1 · recruiting
- NCT07448038 — A Study to Evaluate the Efficacy, Safety, Pharmacodynamics (PD), and Pharmacokinetics (PK) of Selnoflast in Reducing Vas · Phase 2 · recruiting
- NCT07425522 — A Study to Evaluate the Safety, Tolerability, Pharmacodynamics, and Pharmacokinetics of RO7823653 in Participants With D · Phase 1 · recruiting
- NCT07342114 — A Dose-Escalation Study of RO7875913 in Healthy Participants · Phase 1 · recruiting
- NCT07214662 — A Study to Evaluate the Safety, Pharmacokinetics, and Activity of GDC-0587 as a Monotherapy and in Combination With Gire · Phase 1 · recruiting
Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT04256265 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by Genentech, Inc.
- Last refreshed: 5 October 2020
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT04256265.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing