Last reviewed · How we verify
Growing up With the Young Endocrine Support System (YESS!)
Transition from paediatric to adult endocrinology is a challenge for adolescents, families and doctors. Up to 25% of young adults with chronic endocrine disorders are lost to follow-up ('drop-out') once the young adult moves out of paediatric care. Non-attendance and sub-optimal medical self-management can lead to serious and expensive medical complications. In a pilot study, adolescents suggested the use of e-technology to become more involved in the transition process. The investigators have designed and developed the YESS! game, a tool to help improve medical self-management in adolescents with chronic endocrine disorders. The hypothesis is that adolescents playing the YESS! game will show a larger increase in self-management score during the first year of transition and will have a lower drop-out rate at the adult endocrine outpatient clinic (OPC), compared to adolescents who do not play the game.
Details
| Lead sponsor | dr. Laura C. G. de Graaff-Herder |
|---|---|
| Phase | NA |
| Status | NOT_YET_RECRUITING |
| Enrolment | 160 |
| Start date | Sun Dec 01 2024 00:00:00 GMT+0000 (Coordinated Universal Time) |
| Completion | Tue Dec 01 2026 00:00:00 GMT+0000 (Coordinated Universal Time) |
Conditions
- Congenital Adrenal Hyperplasia
- Hypogonadotropic Hypogonadism
- Growth Hormone Deficiency
- Combined Pituitary Hormone Deficiency
- Turner Syndrome
- Klinefelter Syndrome
- Addison's Disease
- Androgen Insensitivity Syndrome
- Thyroid Dysgenesis
Interventions
- YESS! game
- Snake '97
- Transition-toolkit
Countries
Belgium, United Kingdom, Netherlands, Spain