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NCT04198987

Dietary Monosaccharide Supplementation in Patients With Congenital Disorders of Glycosylation

Completed Last updated 1 October 2025
What this trial tests

trial in Congenital Disorder of Glycosylation in 20 participants. Completed in 11 June 2025.

Timeline
6 December 2018
Primary endpoint
11 June 2025
11 June 2025

Quick facts

Lead sponsorMayo Clinic
StatusCompleted
Study typeOBSERVATIONAL
Enrollment20
Start date6 December 2018
Primary completion11 June 2025
Estimated completion11 June 2025
Sites1 location across United States

Conditions studied

Sponsor

Mayo Clinic

Who can join

Eligibility, any sex, with Congenital Disorder of Glycosylation. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Researchers are trying to assess whether the use of simple sugars given as a daily dietary supplement can improve the health of children with congenital disorders of glycosylation (CDG).

Publications & conference data

4 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Congenital disorders of glycosylation (CDG): state of the art in 2022.
    Francisco R, Brasil S, Poejo J, Jaeken J, et al · · 2023 · cited 34× · PMID 37858231 · DOI 10.1186/s13023-023-02879-z
  2. Novel insights into the phenotype and long-term D-gal treatment in PGM1-CDG: a case series.
    Radenkovic S, Johnsen C, Schulze A, Lail G, et al · · 2023 · cited 7× · PMID 37181075 · DOI 10.1177/26330040221150269
  3. A rare cause of infantile achalasia: GMPPA-congenital disorder of glycosylation with two novel compound heterozygous variants.
    Geiculescu I, Dranove J, Cosper G, Edmondson AC, et al · · 2022 · cited 7× · PMID 35665995 · DOI 10.1002/ajmg.a.62859
  4. A Community-Led Approach as a Guide to Overcome Challenges for Therapy Research in Congenital Disorders of Glycosylation.
    Francisco R, Brasil S, Pascoal C, Edmondson AC, et al · · 2022 · cited 5× · PMID 35682409 · DOI 10.3390/ijerph19116829

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