Last reviewed · How we verify
NCT04060082
Voices Of Individuals: Challenges and Experiences Of bvFTD
trial testing Telephone Interview in Frontotemporal Dementia in 26 participants. Completed in 31 December 2025.
31 December 2025
Quick facts
| Lead sponsor | University of Pennsylvania |
|---|---|
| Status | Completed |
| Study type | OBSERVATIONAL |
| Enrollment | 26 |
| Start date | 26 June 2019 |
| Primary completion | 31 December 2025 |
| Estimated completion | 31 December 2025 |
| Sites | 3 locations across United States |
Drugs / interventions tested
- Telephone Interview
Conditions studied
- Frontotemporal Dementia — all drugs for Frontotemporal Dementia →
- Frontotemporal Degeneration — all drugs for Frontotemporal Degeneration →
- Frontotemporal Dementia, Behavioral Variant — all drugs for Frontotemporal Dementia, Behavioral Variant →
- FTD — all drugs for FTD →
Sponsor
University of Pennsylvania
Who can join
18 and older, any sex, with Frontotemporal Dementia or Frontotemporal Degeneration. Patients with the condition only — healthy volunteers not accepted.
Sponsor's own description
The VOICE Of bvFTD study is a telephone interview research study about life with or at risk for behavioral variant frontotemporal dementia (bvFTD). The study aims to understand how bvFTD impacts individuals' day to day lives, how people think about themselves, and what challenges they face.
Publications & conference data
1 peer-reviewed publication reference this trial (live from Europe PMC):
-
The lived experience of reconstructing identity in response to genetic risk of frontotemporal degeneration and amyotrophic lateral sclerosis.
Dratch L, Owczarzak J, Mu W, Cousins KAQ, et al · · 2024 · cited 12× · PMID 37424394 · DOI 10.1002/jgc4.1749
Verify or expand the search:
- PubMed search for NCT04060082
- Europe PMC full search
- ASCO Meeting Library
- ESMO Meeting Library
- bioRxiv preprints
- medRxiv preprints
- Google Scholar
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Other recruiting trials for Frontotemporal Dementia
Currently open trials in the same condition.
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- NCT06377033 — Using the EHR to Advance Genomic Medicine Across a Diverse Health System · NA · recruiting
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- NCT06093126 — Lemborexant for Insomnia in a Patient With Dementia: An N-of-1 Trial · Phase 4 · recruiting
Other University of Pennsylvania trials
Trials by the same sponsor.
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Verify against primary sources
- ClinicalTrials.gov — authoritative US registry record
- WHO ICTRP — international registry index
- EU Clinical Trials Register
- Sponsor press releases (Google)
- Trial protocol + status: ClinicalTrials.gov NCT04060082 (US National Library of Medicine, public domain)
- Publications: Europe PMC API search by NCT ID, retrieved 10 June 2026
- Drug + disease cross-links: matched in real time against Drug Landscape's normalised drug + company + condition tables
- Sponsor: as reported to ClinicalTrials.gov by University of Pennsylvania
- Last refreshed: 12 January 2026
Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT04060082.
Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing