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NCT03979521: Mya-BoD

Burden of Disease in Myasthenia Gravis

Completed Last updated 4 January 2022
What this trial tests

trial in Myasthenia Gravis in 1,680 participants. Completed in 31 July 2019.

Timeline
1 May 2019
Primary endpoint
31 July 2019
31 July 2019

Quick facts

Lead sponsorCharite University, Berlin, Germany
StatusCompleted
Study typeOBSERVATIONAL
Enrollment1,680
Start date1 May 2019
Primary completion31 July 2019
Estimated completion31 July 2019
Sites1 location across Germany

Conditions studied

Sponsor

Charite University, Berlin, Germany

Who can join

18 and older, any sex, with Myasthenia Gravis. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Questionnaire-based survey addressed to german patients with the chronic autoimmune muscle disease called myasthenia gravis regarding quality of life, socioeconomic impact, social support, course of disease, complications of therapy and psychological comorbidities.

Publications & conference data

4 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Burden of disease in myasthenia gravis: taking the patient's perspective.
    Lehnerer S, Jacobi J, Schilling R, Grittner U, et al · · 2022 · cited 114× · PMID 34800167 · DOI 10.1007/s00415-021-10891-1
  2. The burden of disease in seronegative myasthenia gravis: a patient-centered perspective.
    Lehnerer S, Stegherr R, Grittner U, Stein M, et al · · 2025 · cited 5× · PMID 40264778 · DOI 10.3389/fimmu.2025.1555075
  3. The economic burden of Myasthenia gravis from the patient´s perspective and reflected in German claims data.
    Lehnerer S, Herdick M, Mevius A, Grittner U, et al · · 2025 · cited 3× · PMID 39994434 · DOI 10.1038/s41598-025-91372-7
  4. The burden of myasthenia gravis - highlighting the impact on family planning and the role of social support.
    Stein M, Grittner U, Stegherr R, Gerischer L, et al · · 2023 · cited 3× · PMID 38162439 · DOI 10.3389/fneur.2023.1307627

Verify or expand the search:

Other recruiting trials for Myasthenia Gravis

Currently open trials in the same condition.

Other Charite University, Berlin, Germany trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT03979521.

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