Last reviewed · How we verify

NCT03743415

Caregivers' and Cancer Survivors' Psychological Distress & Symptom Management

Completed NA Results posted Last updated 29 November 2023
What this trial tests

NA trial testing Handbook in Cancer in 908 participants. Completed in 27 May 2022.

Timeline
16 January 2019
Primary endpoint
27 May 2022
27 May 2022

Quick facts

Lead sponsorUniversity of Arizona
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationrandomized
Designsequential
Maskingsingle
Primary purposesupportive care
Enrollment908
Start date16 January 2019
Primary completion27 May 2022
Estimated completion27 May 2022
Sites1 location across United States

Drugs / interventions tested

Conditions studied

Sponsor

University of Arizona

Who can join

18 and older, any sex, with Cancer. Patients with the condition only — healthy volunteers not accepted.

Results — posted to ClinicalTrials.gov

Per-arm endpoint measurements with 95% confidence intervals where reported. Source: trial results section.

Symptom Severity Index- Comparison of Two Groups Created by First Randomization Primary · Weeks 1-13 and week 17

Symptoms were measured using the modified General Symptom Distress Scale (GSDS), a brief instrument that measures 18 common symptoms fatigue, sleep difficulties, pain, headache, difficulty concentrating, lack of appetite, nausea, vomiting, constipation, diarrhea, numbness or tingling, skin rashes or sores, swelling, weakness, shortness of breath, cough, depression, and anxiety. Respondents indicate severity of each symptom on the scale from 0=not present to 10=worst possible. A summed symptom severity index for 16 symptoms other than depression and anxiety was computed by adding severities of

Average over weeks 1-13
GroupValue95% CI
Survivors- SMSH Alone26.28± 0.60
Survivors- SMSH+ TIPC26.55± 0.98
Caregivers- SMSH Alone12.02± 0.40
Caregivers- SMSH+ TIPC11.19± 0.65
Week 17
GroupValue95% CI
Survivors- SMSH Alone25.72± 1.07
Survivors- SMSH+ TIPC26.30± 1.78
Caregivers- SMSH Alone10.16± 0.74
Caregivers- SMSH+ TIPC9.04± 1.15
Symptom Severity Index- Comparison of Two Groups Created by Second Randomization Primary · Weeks 5-13 and week 17

Symptoms were measured using the modified General Symptom Distress Scale (GSDS), a brief instrument that measures 18 common symptoms fatigue, sleep difficulties, pain, headache, difficulty concentrating, lack of appetite, nausea, vomiting, constipation, diarrhea, numbness or tingling, skin rashes or sores, swelling, weakness, shortness of breath, cough, depression, and anxiety. Respondents indicate severity of each symptom on the scale from 0=not present to 10=worst possible. A summed symptom severity index for 16 symptoms other than depression and anxiety was computed by adding severities of

Average over weeks 5-13
GroupValue95% CI
Survivors- SMSH Alone33.67± 1.73
Survivors- SMSH+ TIPC34.14± 1.75
Caregivers- SMSH Alone14.50± 1.36
Caregivers- SMSH+ TIPC12.53± 1.37
Week 17
GroupValue95% CI
Survivors- SMSH Alone37.84± 2.73
Survivors- SMSH+ TIPC35.86± 2.82
Caregivers- SMSH Alone15.22± 1.95
Caregivers- SMSH+ TIPC11.92± 1.96
Depressive Symptoms- Comparison of Two Groups Created by First Randomization Secondary · Week 13 and week 17

Measured using Center for Epidemiological Studies- Depression (CES-D) 20-item scale. Potential score range is 0-60. Higher scores indicated worse outcome (higher depressive symptoms).

Week 13
GroupValue95% CI
Survivors- SMSH Alone12.90± 0.59
Survivors- SMSH+ TIPC13.78± 0.97
Caregivers- SMSH Alone10.48± 0.49
Caregivers- SMSH+ TIPC10.44± 0.83
Week 17
GroupValue95% CI
Survivors- SMSH Alone13.60± 0.60
Survivors- SMSH+ TIPC13.67± 0.98
Caregivers- SMSH Alone9.94± 0.49
Caregivers- SMSH+ TIPC9.62± 0.82
Depressive Symptoms- Comparison of Two Groups Created by Second Randomization Secondary · Week 13 and week 17

Measured using Center for Epidemiological Studies- Depression (CES-D) 20-item scale. Potential score range is 0-60. Higher scores indicated worse outcome (higher depressive symptoms).

Week 13
GroupValue95% CI
Survivors- SMSH Alone19.21± 1.57
Survivors- SMSH+ TIPC19.17± 1.65
Caregivers- SMSH Alone11.60± 1.29
Caregivers- SMSH+ TIPC13.60± 1.29
Week 17
GroupValue95% CI
Survivors- SMSH Alone20.34± 1.58
Survivors- SMSH+ TIPC21.24± 1.67
Caregivers- SMSH Alone12.67± 1.27
Caregivers- SMSH+ TIPC12.46± 1.29
Anxiety Symptoms- Comparison of Two Groups Created by First Randomization Secondary · Week 13 and week 17

Measured using Patient-Reported Outcomes Measurement Information System (PROMIS)-Anxiety 8a short form. Each question is rated on a five-point scale from 1=Never to 5=Always. The lowest possible raw score is 8; the highest possible raw score is 40. Raw scores are converted into t-scores with potential range of 37.1 to 83.1. Higher scores indicate greater anxiety. The mean of the US general population is 50 with standard deviation 10. Consensus-based but not data-based thresholds for scores in cancer populations are 50 for mildly symptomatic, 60 for moderately symptomatic, and 70 for severely s

Week 13
GroupValue95% CI
Survivors- SMSH Alone48.98± 0.54
Survivors- SMSH+ TIPC50.86± 0.90
Caregivers- SMSH Alone47.72± 0.50
Caregivers- SMSH+ TIPC47.58± 0.83
Week 17
GroupValue95% CI
Survivors- SMSH Alone49.11± 0.54
Survivors- SMSH+ TIPC50.91± 0.90
Caregivers- SMSH Alone47.58± 0.50
Caregivers- SMSH+ TIPC46.89± 0.82
Anxiety Symptoms- Comparison of Two Groups Created by Second Randomization Secondary · Week 13 and week 17

Measured using Patient-Reported Outcomes Measurement Information System (PROMIS)-Anxiety 8a short form. Each question is rated on a five-point scale from 1=Never to 5=Always. The lowest possible raw score is 8; the highest possible raw score is 40. Raw scores are converted into t-scores with potential range of 37.1 to 83.1. Higher scores indicate greater anxiety. The mean of the US general population is 50 with standard deviation 10. Consensus-based but not data-based thresholds for scores in cancer populations are 50 for mildly symptomatic, 60 for moderately symptomatic, and 70 for severely s

Week 13
GroupValue95% CI
Survivors- SMSH Alone52.90± 1.32
Survivors- SMSH+ TIPC54.31± 1.39
Caregivers- SMSH Alone50.47± 1.31
Caregivers- SMSH+ TIPC49.92± 1.30
Week 17
GroupValue95% CI
Survivors- SMSH Alone55.75± 1.35
Survivors- SMSH+ TIPC55.48± 1.40
Caregivers- SMSH Alone49.45± 1.30
Caregivers- SMSH+ TIPC49.77± 1.30

Sponsor's own description

Sample: The sample will be 298 ethnically diverse (30% Hispanic) survivors who have a new diagnosis or localized recurrence of solid tumor cancer and elevated depression or anxiety and their informal caregivers. Design: The investigators selected the SMART design for this study over alternative designs (e.g.,implementation designs) because the SMART design allows a precision or personalized approach to determine the right treatment at the right dose with the right sequence for the right survivor-caregiver dyad. SMART designs, although newer, show promise in developing the sequences of evidence-based interventions for more efficient and individualized patient- and caregiver-centered care. The investigators will use findings from this study to create an algorithm for clinically meaningful decision making about symptom management for survivors and their caregivers to be tested in future implementation/dissemination studies. The dyad (survivor-caregiver) will be randomly assigned to either: 1) Symptom Management and Survivorship Guideline (Handbook) alone or 2) Telephone Interpersonal Counseling (TIP-C) +Handbook for 8 weeks followed by continued Handbook alone for 4 weeks. During 12 weeks following initial randomization, all participants will receive weekly telephone contacts to assess symptoms, deliver the assigned intervention and assess its enactment and fidelity. After the initial 4 weeks in the Handbook alone group, the survivor's response to the intervention will be determined. If the survivor responds (defined as a reduced score on depression and/or anxiety), the dyad will continue with the Handbook alone for 8 more weeks. If the survivor is a non-responder (defined as no improvement or a worsening score for depression and/or anxiety), the dyad will be re-randomized to either continue with Handbook alone for 8 more weeks, or add 8 weeks of TIP-C. Outcomes will be assessed at baseline, weeks 13 and 17 for both members of the dyad.

Publications & conference data

5 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Social Determinants of Health and Symptom Burden During Cancer Treatment.
    Badger TA, Segrin C, Crane TE, Crane TE, et al · · 2023 · cited 19× · PMID 36729777 · DOI 10.1097/nnr.0000000000000636
  2. Social determinants of health, psychological distress, and caregiver burden among informal cancer caregivers of cancer survivors during treatment.
    Badger T, Segrin C, Crane T, Morrill K, et al · · 2024 · cited 17× · PMID 37609806 · DOI 10.1080/07347332.2023.2248486
  3. A sequential multiple assignment randomized trial of symptom management for cancer survivors during treatment and their informal caregivers.
    Badger T, Segrin C, Crane TE, Chalasani P, et al · · 2024 · cited 4× · PMID 39023547 · DOI 10.1007/s00520-024-08734-6
  4. Moderators of interdependent psychological distress in cancer survivor-caregiver dyads.
    Segrin C, Sikorskii A, Cunicelli N, Badger T. · · 2025 · cited 1× · PMID 39780689 · DOI 10.1080/07347332.2025.2450012
  5. Symptom management interventions influence unscheduled health services use among cancer survivors and caregivers.
    Badger T, Segrin C, Crane TE, Chalasani P, et al · · 2026 · cited 1× · PMID 39612086 · DOI 10.1007/s11764-024-01723-y

Verify or expand the search:

Other recruiting trials for Cancer

Currently open trials in the same condition.

Other University of Arizona trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT03743415.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing