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NCT03728803: NEMTRAIN

Inspiratory Muscle Training in Nemaline Myopathy

Completed NA Last updated 5 December 2024
What this trial tests

NA trial testing Threshold IMT, Philips Respironics, Murrysville, PA, USA in Nemaline Myopathy in 42 participants. Completed in 25 March 2021.

Timeline
10 October 2018
Primary endpoint
25 March 2021
25 March 2021

Quick facts

Lead sponsorRadboud University Medical Center
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationnon randomized
Designsequential
Maskingnone
Primary purposesupportive care
Enrollment42
Start date10 October 2018
Primary completion25 March 2021
Estimated completion25 March 2021
Sites1 location across Netherlands

Drugs / interventions tested

Conditions studied

Sponsor

Radboud University Medical Center

Who can join

Adults 6 to 80, any sex, with Nemaline Myopathy or Inspiratory Muscle Training. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Nemaline myopathy is a rare congenital myopathy. Respiratory failure is the main cause of death in these patients. The primary objective of this study is to determine the effect of a 8-week inspiratory muscle training program on respiratory muscle function in nemaline myopathy patients. The secondary objective is to determine respiratory muscle function in nemaline myopathy patients and its correlation with clinical severity and general neuromuscular function. The nemaline myopathy patients will be included in the first phase for a clinical characterization. From this phase patients will be selected for the second phase, which is a controlled before-after trial of inspiratory muscle training. The primary outcome is the change in maximal inspiratory pressure (MIP) after active inspiratory muscle training

Publications & conference data

1 peer-reviewed publication reference this trial (live from Europe PMC):

  1. Inspiratory Muscle Training in Nemaline Myopathy.
    van Kleef ESB, Langer D, van Engelen BGM, Ottenheijm CAC, et al · · 2023 · cited 2× · PMID 37458044 · DOI 10.3233/jnd-221665

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Other recruiting trials for Nemaline Myopathy

Currently open trials in the same condition.

Other Radboud University Medical Center trials

Trials by the same sponsor.

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Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT03728803.

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