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NCT03689179: TLC

Virtual Coaching to Maximize Dementia Caregivers' Respite Time Use

Completed NA Results posted Last updated 15 October 2024
What this trial tests

NA trial testing Time for Living and Caring (TLC) in Anxiety in 166 participants. Completed in 1 May 2024.

Timeline
20 October 2020
Primary endpoint
5 August 2022
1 May 2024

Quick facts

Lead sponsorUniversity of Utah
PhaseNA
StatusCompleted
Study typeINTERVENTIONAL
Allocationrandomized
Designparallel
Maskingnone
Primary purposesupportive care
Enrollment166
Start date20 October 2020
Primary completion5 August 2022
Estimated completion1 May 2024
Sites1 location across United States

Drugs / interventions tested

Conditions studied

Sponsor

University of Utah

Who can join

18 and older, any sex, with Anxiety or Burden, Dependency. Patients with the condition only — healthy volunteers not accepted.

Results — posted to ClinicalTrials.gov

Per-arm endpoint measurements with 95% confidence intervals where reported. Source: trial results section.

Anxiety Symptoms, as Measured by PROMIS Anxiety Short Form Primary · Baseline (week 1, pre-intervention), week 4, week 8, week 12, week 16 (post-intervention) and week 20 (follow-up) for both Group A and Group B

Anxiety was measured with the PROMIS Anxiety short-form questionnaire for adults, a self-report, 8-item additive scale that standardizes the distribution of anxiety-related symptoms (T-score) on a population-distribution with a mean of 50 and standard deviation of 10: "During the past 7 days, I felt nervous, anxious, fearful, uneasy, tense, worried, unable to focus on anything other than my anxiety, felt like I needed help with my anxiety" each assessed with a five-category response (never, rarely, sometimes, often, always). Higher scores indicate a higher level of anxiety.

T0 - baseline, Pre-Intervention
GroupValue95% CI
Treatment With Follow-up (Group A)55.5153.48 – 57.53
Wait-List / Control Treatment With Follow-up (Group B)53.9351.95 – 55.90
T4
GroupValue95% CI
Treatment With Follow-up (Group A)56.7554.65 – 58.86
Wait-List / Control Treatment With Follow-up (Group B)57.3555.50 – 59.21
T8
GroupValue95% CI
Treatment With Follow-up (Group A)56.3954.38 – 58.40
Wait-List / Control Treatment With Follow-up (Group B)56.9955.38 – 58.59
T12
GroupValue95% CI
Treatment With Follow-up (Group A)56.9254.76 – 59.09
Wait-List / Control Treatment With Follow-up (Group B)54.2052.53 – 55.86
T16 - Post Intervention
GroupValue95% CI
Treatment With Follow-up (Group A)56.5454.24 – 58.85
Wait-List / Control Treatment With Follow-up (Group B)52.7550.75 – 54.75
T20 - Follow-up
GroupValue95% CI
Treatment With Follow-up (Group A)58.1555.79 – 60.52
Wait-List / Control Treatment With Follow-up (Group B)55.7353.69 – 57.77
Caregiver Burden Score, as Measured by "Caregiver Burden Inventory" Primary · Baseline (week 1, pre-intervention), week 4, week 8, week 12, week 16 (post-intervention) and week 20 (follow-up) for both Group A and Group B

Self-report multi-item index (24 items; range 0-96). Lower scores indicate lower levels of caregiver burden. Higher scores indicate higher levels of perceived burden associated with caregiving tasks.

T0 - Baseline
GroupValue95% CI
Treatment With Follow-up (Group A)45.9442.22 – 49.65
Wait-List / Control Treatment With Follow-up (Group B)46.1042.40 – 49.79
T4
GroupValue95% CI
Treatment With Follow-up (Group A)45.3341.39 – 49.27
Wait-List / Control Treatment With Follow-up (Group B)43.2240.50 – 45.95
T8 - mid intervention
GroupValue95% CI
Treatment With Follow-up (Group A)45.0241.37 – 48.66
Wait-List / Control Treatment With Follow-up (Group B)43.3740.16 – 46.58
T12
GroupValue95% CI
Treatment With Follow-up (Group A)45.7241.66 – 49.78
Wait-List / Control Treatment With Follow-up (Group B)40.8037.65 – 43.94
T16 - Post intervention
GroupValue95% CI
Treatment With Follow-up (Group A)49.9145.57 – 54.26
Wait-List / Control Treatment With Follow-up (Group B)42.0538.31 – 45.79
T20 - follow up
GroupValue95% CI
Treatment With Follow-up (Group A)50.0945.47 – 54.71
Wait-List / Control Treatment With Follow-up (Group B)43.2340.01 – 46.46
Respite Time-Use (in Hours Per Week) Secondary · Pre-Intervention (baseline, week 1) and Post-Intervention (week-16) for both Group A and Group B

Participants were asked to self-report number of hours they typically receive respite in a typical week. The following survey question and description were asked to all participants "On average, how many hours of respite do you get in a typical week? These would be hours that you can completely turn-off your caregiving responsibilities, while the needs and safety of your family member are not your primary responsibility."

Pre Intervention
GroupValue95% CI
Treatment With Follow-Up (Group A)8.77± 8.89
Wait-List/Control Treatment With Follow-up (Group B)7.81± 11.01
Post Intervention
GroupValue95% CI
Treatment With Follow-Up (Group A)13.44± 12.64
Wait-List/Control Treatment With Follow-up (Group B)13.11± 10.82
Respite Satisfaction: Count (%) of Participants Who Agreed or Strongly Agreed With the Statement "I am Happy With What I Choose to do During Respite" Secondary · Pre-Intervention (baseline, week 1) and Post-Intervention (week 16) for both Group A and Group B

Self-report single item measure, assessing partcipants' perceived level of satisfaction with their respite time and time use. Respondents were asked about their level of agreement with the following statement: "I am happy with what I choose to do during my respite time". Responses were recorded on a five-point Likert scale with strongly disagree=1 and strongly agree 5. This variable is dichotomized, showing the count (and percentage) of the sample that responded with "agree" or "stongly agree." This self-report assessment was only collected at baseline (pre-intervention) and at time 16 (post-i

Pre Intervention (baseline, week 1)
GroupValue95% CI
Treatment With Follow-Up (Group A)38
Waitlist/Control Treatment With Follow-Up (Group B)34
Post Intervention (week 16)
GroupValue95% CI
Treatment With Follow-Up (Group A)61
Waitlist/Control Treatment With Follow-Up (Group B)59
Depressive Symptoms, as Measured by the "PROMIS Depression Scale (Vol 1 Short Form)" Secondary · Baseline (week 1, pre-intervention), week 4, week 8, week 12, week 16 (post-intervention) and week 20 (follow-up) for both Group A and Group B

Self-report multi-item index (8-items, additive), with higher scores indicating greater presence and frequency of depressive symptoms; scores are standardized to a distribution of depression-related symptoms on a population-distribution with a mean of 50 and standard deviation of 10 (T-score). Participants self-reported to the following survey questions: "During the past 7 days, I felt worthless, helpless, depressed, hopeless, like a failure, unhappy, that I had nothing to look forward to, that nothing could cheer me up," each assessed with a five-category response (never, rarely, sometimes, o

T0 - preintervention
GroupValue95% CI
Treatment With Follow-up (Group A)54.3452.76 – 55.92
Wait-List / Control Treatment With Follow-up (Group B)53.9252.22 – 55.61
T4
GroupValue95% CI
Treatment With Follow-up (Group A)55.8154.21 – 57.41
Wait-List / Control Treatment With Follow-up (Group B)55.1853.61 – 56.74
T8 - mid intervention
GroupValue95% CI
Treatment With Follow-up (Group A)54.6852.81 – 56.55
Wait-List / Control Treatment With Follow-up (Group B)54.3852.76 – 56.00
T12
GroupValue95% CI
Treatment With Follow-up (Group A)55.7353.88 – 57.58
Wait-List / Control Treatment With Follow-up (Group B)53.1951.75 – 54.63
T16 - post-intervention
GroupValue95% CI
Treatment With Follow-up (Group A)54.7552.86 – 56.64
Wait-List / Control Treatment With Follow-up (Group B)52.5250.65 – 54.39
T20 - follow-up
GroupValue95% CI
Treatment With Follow-up (Group A)56.2554.43 – 58.05
Wait-List / Control Treatment With Follow-up (Group B)53.8552.08 – 55.62

Sponsor's own description

The "Time for Living \& Caring" (TLC) intervention is an online, self-administered intervention, with the purpose of providing informal family caregivers with resources, support, and education to maximize the benefit of their respite time-use (respite is defined as planned time away from caregiving; it can be provided by a formal service provider or informal arrangements within families/networks). The study will use a full-powered pilot sample (anticipated n=150; actual n=166) and a randomized waitlist control design to examine feasibility and initial efficacy of the TLC intervention.

Publications & conference data

5 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Remotely delivered information, training and support for informal caregivers of people with dementia.
    González-Fraile E, Ballesteros J, Rueda JR, Santos-Zorrozúa B, et al · · 2021 · cited 54× · PMID 33417236 · DOI 10.1002/14651858.cd006440.pub3
  2. Evaluating the Efficacy of Time for Living and Caring: An Online Intervention to Support Dementia Caregivers' Use of Respite.
    Iacob E, Caserta M, Donaldson G, Sparks C, et al · · 2024 · cited 7× · PMID 38803611 · DOI 10.1093/geroni/igae043
  3. Maximizing the Benefit of Respite for Dementia Caregivers: A Study Protocol Describing the Development & Evaluation of the Time for Living & Caring (TLC) Intervention.
    Utz RL, Caserta M, Iacob E, Sparks C, et al · · 2023 · cited 7× · PMID 38313766 · DOI 10.21926/obm.icm.2304040
  4. Comparison of recruitment methodologies for clinical trials: Results from the time for living and caring (TLC) intervention study.
    Sparks C, Hsu A, Neller SA, Eaton J, et al · · 2024 · cited 6× · PMID 38554816 · DOI 10.1016/j.cct.2024.107518
  5. Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite.
    Thompson AD, Terrill AL, Caserta M, Wong B, et al · · 2025 · cited 1× · PMID 40825209 · DOI 10.2196/71792

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Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing