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NCT03682731

Light Exposure Patterns and Symptoms Among Patients With Erythropoietic Protoporphyria

Completed Last updated 2 October 2018
What this trial tests

trial in Erythropoietic Protoporphyria in 14 participants. Completed in 1 August 2017.

Timeline
1 April 2017
Primary endpoint
1 August 2017
1 August 2017

Quick facts

Lead sponsorBispebjerg Hospital
StatusCompleted
Study typeOBSERVATIONAL
Enrollment14
Start date1 April 2017
Primary completion1 August 2017
Estimated completion1 August 2017
Sites2 locations across Denmark

Conditions studied

Sponsor

Bispebjerg Hospital

Who can join

12 and older, any sex, with Erythropoietic Protoporphyria. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Background: Erythropoietic protoporphyria (EPP) is characterized by development of painful skin symptoms upon exposure to visible light dye to accumulation of the photoactive substance protoporphyrin IX (PpIX) in the skin.This study aimed to quantify the actual light exposure of patients with EPP during everyday life. The investigators further aimed to establish the associations between symptoms and light exposure, use of protective clothes, and erythrocyte PpIX concentration.

Publications & conference data

No peer-reviewed publications indexed yet for this trial. Completed trials usually publish results within 12-18 months.

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Other Bispebjerg Hospital trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

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