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NCT03591575: START

Safety and Efficacy of Early Treatment With Deferiprone in Infants and Young Children

Completed Phase 4 Results posted Last updated 15 March 2024
What this trial tests

Phase 4 trial testing Deferiprone oral solution in Beta Thalassemia Major Anemia in 64 participants. Completed in 29 September 2020.

Timeline
9 November 2018
Primary endpoint
29 September 2020
29 September 2020

Quick facts

Lead sponsorChiesi Canada Corp
PhasePhase 4
StatusCompleted
Study typeINTERVENTIONAL
Allocationrandomized
Designparallel
Maskingquadruple
Primary purposetreatment
Enrollment64
Start date9 November 2018
Primary completion29 September 2020
Estimated completion29 September 2020
Sites4 locations across Indonesia, Egypt

Drugs / interventions tested

Conditions studied

Sponsor

Chiesi Canada Corp

Who can join

Adults 6 Months to 9, any sex, with Beta Thalassemia Major Anemia or Iron Overload. Patients with the condition only — healthy volunteers not accepted.

Results — posted to ClinicalTrials.gov

Per-arm endpoint measurements with 95% confidence intervals where reported. Source: trial results section.

The Percentage of Patients in Each Treatment Group Who Still Have a Serum Ferritin Level < 1000 Micrograms Per Liter (μg/L) at Month 12 Primary · 12 months

Current treatment guidelines are that standard iron chelation therapy should begin after a serum ferritin level of 1000 μg/L has been reached; thus, patients who were at this level at two consecutive visits were removed from the study so that they could start on this therapy.

GroupValue95% CI
Deferiprone21
Placebo12
Percentage of Patients With Serum Ferritin Still Below the Threshold at Different Time Points Secondary · 4, 8, and 12 months

The outcome measure was the percentage of patients in each group still below the serum ferritin threshold at Months 4, 8, and 12. Without adequate chelation therapy, most patients receiving red blood cell transfusions are likely to exceed this level within a few months. However, a safety feature of the study design was that patients who reached the serum ferritin threshold were withdrawn (i.e., so that they could begin standard chelation therapy).

Number of patients still below threshold at Month 4
GroupValue95% CI
Deferiprone29
Placebo28
Number of patients still below threshold at Month 8
GroupValue95% CI
Deferiprone22
Placebo20
Number of patients still below threshold at Month 12
GroupValue95% CI
Deferiprone21
Placebo12

Adverse events — posted to ClinicalTrials.gov

Time frame: 12 months. Reporting threshold: 5%. Adverse-event reports describe events observed during the trial — not all are caused by the drug.

Deferiprone
Serious: 5/32 (16%)
Deaths: 0/32
Placebo
Serious: 2/32 (6%)
Deaths: 0/32

Serious adverse events (5 terms)

ReactionSystemDeferipronePlacebo
NeutropeniaBlood and lymphatic system disorders
AgranulocytosisBlood and lymphatic system disorders
Autoimmune haemolytic anaemiaBlood and lymphatic system disorders
Dengue feverInfections and infestations
Bronchitis chronicRespiratory, thoracic and mediastinal disorders
Other adverse events (18 terms — click to expand)

ReactionSystemDeferipronePlacebo
PyrexiaGeneral disorders
Neutrophil count decreasedInvestigations
NasopharyngitisInfections and infestations
RhinorrhoeaRespiratory, thoracic and mediastinal disorders
BronchitisInfections and infestations
CoughRespiratory, thoracic and mediastinal disorders
DiarrhoeaGastrointestinal disorders
GastroenteritisInfections and infestations
Upper respiratory tract infectionInfections and infestations
PharyngitisInfections and infestations
TonsillitisInfections and infestations
Abdominal painGastrointestinal disorders
VomitingGastrointestinal disorders
Abdominal pain lowerGastrointestinal disorders
Dental cariesGastrointestinal disorders
Thermal burnInjury, poisoning and procedural complications
ArthralgiaMusculoskeletal and connective tissue disorders
Oropharyngeal painRespiratory, thoracic and mediastinal disorders

Most-reported serious reactions: Neutropenia, Agranulocytosis, Autoimmune haemolytic anaemia, Dengue fever, Bronchitis chronic.

Data from ClinicalTrials.gov NCT03591575 adverse events section.

Sponsor's own description

This study is looking at the effects of giving early treatment of deferiprone to young children with beta thalassemia who have started receiving regular blood transfusions but have not yet reached the criteria for starting on iron chelation therapy. Half the patients in the study will receive deferiprone, and the other half will receive placebo, for up to 12 months.

Publications & conference data

6 peer-reviewed publications reference this trial (live from Europe PMC):

  1. Iron homeostasis and ferroptosis in human diseases: mechanisms and therapeutic prospects.
    Ru Q, Li Y, Chen L, Wu Y, et al · · 2024 · cited 365× · PMID 39396974 · DOI 10.1038/s41392-024-01969-z
  2. Interventions for improving adherence to iron chelation therapy in people with sickle cell disease or thalassaemia.
    Geneen LJ, Dorée C, Estcourt LJ. · · 2023 · cited 4× · PMID 36877640 · DOI 10.1002/14651858.cd012349.pub3
  3. Abstract Book for the 27th Congress of the European Hematology Association
    · 2022
  4. P1558: EARLY-START DEFERIPRONE IN INFANTS/YOUNG CHILDREN WITH TRANSFUSION-DEPENDENT BETA THALASSEMIA: EVIDENCE FOR IRON SHUTTLING TO TRANSFERRIN—RANDOMIZED, DOUBLE-BLIND, PLACEBO-CONTROLLED TRIAL (START)
    Tricta F, Fradette C, Temin N, Rozova A, et al · · 2022
  5. Abstract Book for the 2nd Sickle Cell & Thalassaemia Virtual Conference
    · 2022
  6. S123: SAFETY AND EFFICACY OF EARLY-START DEFERIPRONE IN INFANTS AND YOUNG CHILDREN WITH BETA-THALASSEMIA (START STUDY)
    Elalfy M, El-Beshlawy A, Adly A, Ebeid F, et al · · 2022

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Other trials of Deferiprone oral solution

Trials testing the same drug.

Other Chiesi Canada Corp trials

Trials by the same sponsor.

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Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT03591575.

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