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Genetic Education in BRCA Families
The primary goal of this research is to test a web-based genetic education intervention that is designed to educate men and women from hereditary cancer families about the personal relevance of genetic testing in order to help them male decisions about whether to pursue genetic testing. We will test this intervention against standard care for men and women from hereditary cancer families. The web-based educational intervention includes all of the information typically covered during genetic counseling. As a result, after completing the education intervention, participants can proceed directly to a brief telephone call with a genetic counselor followed by testing if they choose. A baseline survey will be administered prior to randomization and then follow-up surveys will be administered at 1-month and 6-months post-randomization. Primary outcomes will be completion of genetic counseling, uptake of genetic testing, genetic test results and quality of life.
Details
| Lead sponsor | Georgetown University |
|---|---|
| Phase | NA |
| Status | ENROLLING_BY_INVITATION |
| Enrolment | 240 |
| Start date | Fri May 01 2020 00:00:00 GMT+0000 (Coordinated Universal Time) |
| Completion | Wed Jun 30 2027 00:00:00 GMT+0000 (Coordinated Universal Time) |
Conditions
- BRCA1 Mutation
- BRCA2 Mutation
Interventions
- Web + Streamlined Telephone Genetic Information
Countries
United States