Last reviewed · How we verify
SurvivorLink: Scalability of an Electronic Personal Health Record
Previous research suggests that children and adolescents with cancer are at heightened risk of late effects that can occur months or years after cancer treatment, yet little is known about programs that increase their return for follow-up cancer care and late effects surveillance. This study will evaluate the impact of an electronic personal health record and education system, SurvivorLink, for pediatric cancer survivors and their caregivers. The researchers will develop a standardized intervention and training for the SurvivorLink trial, followed by conducting a Hybrid Type 1 effectiveness-implementation, clustered randomized, waitlist control trial to evaluate the impact of SurvivorLink on pediatric cancer patients' one year follow-up visits and completion of screening tests. The study will also assess the impact of SurvivorLink on caregiver's patient activation, survivor's and caregiver's quality of life, and self-efficacy to manage a chronic condition. This study will provide the evidence base about the effects of the system to improve follow-up care for children and adolescents with cancer and best practices for implementation for pediatric cancer centers.
Details
| Lead sponsor | Emory University |
|---|---|
| Phase | NA |
| Status | COMPLETED |
| Enrolment | 580 |
| Start date | Mon Jun 14 2021 00:00:00 GMT+0000 (Coordinated Universal Time) |
| Completion | Wed Dec 25 2024 00:00:00 GMT+0000 (Coordinated Universal Time) |
Conditions
- Childhood Cancer
Interventions
- SurvivorLink
Countries
United States