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NCT00091871

A Longitudinal Study of Familial Hypereosinophilia (FE): Natural History and Markers of Disease Progression

Recruiting now Last updated 8 April 2026
What this trial tests

trial in Eosinophilia in 50 participants. Currently enrolling.

Timeline
8 June 2005

Quick facts

Lead sponsorNational Institute of Allergy and Infectious Diseases (NIAID)
StatusRecruiting now
Study typeOBSERVATIONAL
Enrollment50
Start date8 June 2005
Sites1 location across United States

Conditions studied

Sponsor

National Institute of Allergy and Infectious Diseases (NIAID)

Who can join

Adults 1 to 100, any sex, with Eosinophilia or Hypereosinophilic Syndrome. Patients with the condition only — healthy volunteers not accepted.

Sponsor's own description

Eosinophils are a type of white blood cell. Elevated eosinophil levels can damage the heart, nerves, and other organs, in the syndrome known as hypereosinophilic syndrome (HES). Some individuals have a hereditary form of HES known as familial eosinophilia (FE). More research on the causation and mechanisms of HES is needed in order to design more effective and less toxic therapies. This study will investigate FE and its genetic causes, damage mechanisms, and disease markers (such as blood test abnormalities). It will enroll approximately 50 individuals (both adults and children) from a previously studied family with FE. This is a long-term study of indefinite duration. Participants will undergo yearly clinical examinations including medical history, physical examination, bloodwork, EKG, echocardiogram, and pulmonary function tests, with additional or more frequent examinations and tests as required. In addition, participants will donate blood and tissue for research purposes. Both adult and child participants will donate blood. At the initial evaluation, adult participants will donate bone marrow. During the study, some adult participants will also undergo a limited number of leukaopheresis sessions, in which blood is donated from one arm, the blood is separated into red blood cells and other components, and the red blood cells are returned into the donor's other arm.

Publications & conference data

2 peer-reviewed publications reference this trial (live from Europe PMC):

  1. The multidisciplinary approach to eosinophilia.
    Thomsen GN, Christoffersen MN, Lindegaard HM, Davidsen JR, et al · · 2023 · cited 21× · PMID 37274287 · DOI 10.3389/fonc.2023.1193730
  2. Dysregulation of interleukin 5 expression in familial eosinophilia.
    Prakash Babu S, Chen YK, Bonne-Annee S, Yang J, et al · · 2017 · cited 15× · PMID 28226398 · DOI 10.1111/all.13146

Verify or expand the search:

Other recruiting trials for Eosinophilia

Currently open trials in the same condition.

Other National Institute of Allergy and Infectious Diseases (NIAID) trials

Trials by the same sponsor.

Verify against primary sources

Data sources for this page

Drug Landscape aggregates and links these public records for informational use only. Always verify against the primary source before clinical or regulatory decisions. Canonical URL: https://druglandscape.com/trial/NCT00091871.

Primary sources · FDA · ClinicalTrials.gov · EMA · SEC EDGAR · ChEMBL · Wikidata · full sourcing